Access to Primary Care and Preventative Health Services of Migrants
https://libcat.nshealth.ca/en/permalink/provcat42918
Aldo Rosano, editor.
--Cham:
Springer
, c2018.
- Available Online
- View e-Book
- Location
- Online
This salient volume surveys the state of access to primary care and preventive health services by migrants, refugees, and asylum seekers across Europe. Experts in public health and allied fields identify obstacles to healthcare interventions for migrants, including costs, legal status, health-related behaviors and beliefs, and cultural and language barriers. The book includes the latest data concerning access to specific preventive services (e.g., vaccinations, colorectal screenings), specific …
- Available Online
- View e-Book
- Other Authors
- Rosano, Aldo
- Responsibility
- Aldo Rosano, editor
- Place of Publication
- Cham
- Publisher
- Springer
- Date of Publication
- c2018
- Physical Description
- 1 online resource (x, 115 p.) : 3 illus., 1 illus. in color
- Series Title
- SpringerBriefs in public health
- ISBN
- 9783319736303
- 9783319736297 (print ed.)
- 9783319736310 (print ed.)
- ISSN
- 2192-3698
- Subjects (MeSH)
- Emigrants and Immigrants
- Health Policy
- Health Services Accessibility
- Preventive Health Services
- Refugees
- Transients and Migrants
- Other Subjects
- Europe
- Specialty
- Minority Health
- Abstract
- This salient volume surveys the state of access to primary care and preventive health services by migrants, refugees, and asylum seekers across Europe. Experts in public health and allied fields identify obstacles to healthcare interventions for migrants, including costs, legal status, health-related behaviors and beliefs, and cultural and language barriers. The book includes the latest data concerning access to specific preventive services (e.g., vaccinations, colorectal screenings), specific issues of women and sexual minorities, and the potential for health promotion in prevention. Best practices for improving access are outlined as a basis for public health and policy directives toward reducing health disparities between migrant and native populations. Among the topics covered: Access to medical examination for prevention among migrants Access and barriers to infant vaccinations, female cancer screening and colorectal screening among migrant populations; Provision and policy gap between the primary and preventive care required by and the care provided to LGBTQ+ migrants, refugees, and asylum seekers; Health related lifestyles and intermediate health conditions of migrants; Quality of primary healthcare and preventive health services provided to migrants; Adaptations of primary health care for migrants; Access to primary health care and policies on migration and health at a time of economic crisis. Dedicated to bridging research and policy gaps in this vital area, Primary Care Access and Preventive Health Services of Migrants is intended for an international audience of academics, researchers, policymakers, and practitioners in public health and related disciplines.
- Contents
- 1. Foreword -- 2. Rights to primary care access and health prevention of non-nationals and migrants in the European Union Countries -- 3. Access and barriers to childhood immunization among migrant populations -- 4. Access to medical examination for primary prevention among migrants -- 5. Avoidable hospitalization among migrants and ethnic minorities in western countries -- 6. Female migrants' attitudes and access to cervical and breast cancer screening in Europe -- 7. Access to colorectal screening -- 8. Health-related lifestyles among migrants -- 9. Adaptation of primary health care for migrants: recommendations and best practices -- 10. Health policies, patterns, and barriers to migrants' access to primary health care -- 11. Access to primary care and preventive health services of LGBTQ+ migrants, refugees, and asylum seekers -- 12. Concluding remarks.
- Format
- e-Book
- Location
- Online
Adaptive Sports Medicine : A Clinical Guide
https://libcat.nshealth.ca/en/permalink/provcat42985
Arthur Jason De Luigi, editor.
--Cham:
Springer
, c2018.
- Available Online
- View e-Book
- Location
- Online
This first-of-its-kind text provides a comprehensive presentation and review of the unique aspects of adaptive sports medicine and adaptive athletes, who are increasingly active and prominent, not only individually and in local leagues and organizations but also in larger settings like the Paralympics. Divided into thematic sections, part one covers the history and natural course of the care, policies and laws that have been developed over the years for persons with disabilities, as well as the…
- Available Online
- View e-Book
- Other Authors
- De Luigi, Arthur Jason
- Responsibility
- Arthur Jason De Luigi, editor
- Place of Publication
- Cham
- Publisher
- Springer
- Date of Publication
- c2018
- Physical Description
- 1 online resource (xviii, 402 p.) : 157 illus., 127 illus. in color
- ISBN
- 9783319565682
- 9783319565668 (print ed.)
- 9783319565675 (print ed.)
- 9783319859446 (print ed.)
- Subjects (MeSH)
- Athletic Injuries
- Risk Factors
- Sports Medicine - methods
- Sports for Persons with Disabilities
- Specialty
- Sports Medicine
- Abstract
- This first-of-its-kind text provides a comprehensive presentation and review of the unique aspects of adaptive sports medicine and adaptive athletes, who are increasingly active and prominent, not only individually and in local leagues and organizations but also in larger settings like the Paralympics. Divided into thematic sections, part one covers the history and natural course of the care, policies and laws that have been developed over the years for persons with disabilities, as well as the biomechanics and technology of wheelchair sports and adaptive sports prostheses. The medical considerations of the adaptive athlete comprise part two, including injury epidemiology, emergent care, and surgical and rehabilitative considerations. Part three, by far the most extensive section, discusses specific wheelchair and adaptive sports, including adaptive running, cycling, water sports and throwing sports, wheelchair basketball, softball and rugby, as well as adaptive combative and extreme sports. Selected topics, including event planning, advocacy and controversies such as doping, are covered in part four. A comprehensive yet practical text, Adaptive Sports Medicine is a go-to resource and will be an invaluable reference for any sports medicine or primary medicine practitioner working with this unique population.
- Contents
- Part I. Adaptive Sports Medicine: History, Technology and Biomechanics -- 1. History of Adaptive and Disabled Rights within Society, Thus Creating the Fertile Soil to Grow, Adaptive Sports -- 2. Wheelchair Sports Technology and Biomechanics -- 3. Technology and Biomechanics of Adaptive Sports Prostheses -- Part II. Medical Considerations in Adaptive Sports Medicine -- 4. Review of Injury Epidemiology in Paralympic Sports -- 5. Medical Considerations in Adaptive Sports -- 6. Emergent Care of the Adaptive Athlete -- 7. Surgical Considerations in the Adaptive Athlete -- 8. Rehabilitation of the Adaptive Athlete -- Part III. Adaptive Sports -- 9. Adaptive Running -- 10. Adaptive Cycling -- 11. Adaptive Golf: History, Rules and Equipment Modifications, and Sport-Specific Injuries -- 12 Wheelchair Basketball -- 13. Wheelchair Rugby -- 14. Power (Wheelchair) Soccer -- 15. Wheelchair Softball -- 16. Wheelchair Dance Sport -- 17. Wheelchair Fencing -- 18. Wheelchair Curling -- 19. Wheelchair Tennis and Para-table Tennis -- 20. Adaptive Volleyball -- 21. Adaptive Water Sports -- 22. Ice Sled Hockey (Sledge Hockey Outside the United States) -- 23. Adaptive Alpine Skiing and Para-snowboarding -- 24. Adaptive Throwing Sports: Discus, Javelin, Shot Put, and Boccia -- 25. Shooting Sports (Archery, Air Rifle, Trapshooting) -- 26. Weight Lifting in Adaptive Sport -- 27. Adaptive Combative Sports (Judo, Boxing, Wrestling, Mixed Martial Arts) -- 28. Adaptive Extreme Sports -- Part IV. Selected Topics in Adaptive Sports Medicine -- 29. Adaptive Sports Event Planning -- 30. Policy and Advocacy Initiatives to Promote the Benefits of Sports Participation for Individuals with Disability -- 31. Controversies in Adaptive Sports.
- Format
- e-Book
- Location
- Online
The AIDS Pandemic : Searching for a Global Response
https://libcat.nshealth.ca/en/permalink/provcat42955
Michael Merson, Stephen Inrig.
--Cham:
Springer
, c2018.
- Available Online
- View e-Book
- Location
- Online
This ambitious book provides a comprehensive history of the World Health Organization (WHO) Global Programme on AIDS (GPA), using it as a unique lens to trace the global response to the AIDS pandemic. The authors describe how WHO came initially to assume leadership of the global response, relate the strategies and approaches WHO employed over the years, and expound on the factors that led to the Programme's demise and subsequent formation of the Joint United Nations Programme on HIV/AIDS (UNAID…
- Available Online
- View e-Book
- Author
- Merson, Michael
- Other Authors
- Inrig, Stephen
- Responsibility
- Michael Merson, Stephen Inrig
- Place of Publication
- Cham
- Publisher
- Springer
- Date of Publication
- c2018
- Physical Description
- 1 online resource (xviii, 445 p.) : 20 illus
- ISBN
- 9783319471334
- 9783319471327 (print ed.)
- 9783319471341 (print ed.)
- 9783319484310 (print ed.)
- Subjects (MeSH)
- Acquired Immunodeficiency Syndrome - epidemiology
- Acquired Immunodeficiency Syndrome - prevention & control
- Global Health
- Pandemics - prevention & control
- Program Evaluation
- Other Subjects
- World Health Organization
- Abstract
- This ambitious book provides a comprehensive history of the World Health Organization (WHO) Global Programme on AIDS (GPA), using it as a unique lens to trace the global response to the AIDS pandemic. The authors describe how WHO came initially to assume leadership of the global response, relate the strategies and approaches WHO employed over the years, and expound on the factors that led to the Programme's demise and subsequent formation of the Joint United Nations Programme on HIV/AIDS (UNAIDS). The authors examine the global impact of this momentous transition, portray the current status of the global response to AIDS, and explore the precarious situation that WHO finds itself in today as a lead United Nations agency in global health. Several aspects of the global response—the strategies adopted, the roads taken and not taken, and the lessons learned—can provide helpful guidance to the global health community as it continues tackling the AIDS pandemic and confronts future global pandemics. Included in the coverage: The response before the global response Building and coordinating a multi-sectoral response Containing the global spread of HIV Addressing stigma, discrimination, and human rights Rethinking global AIDS governance UNAIDS: finding its place in congested waters The AIDS Pandemic will find an engaged audience among policymakers, students, faculty, journalists, researchers, and other health professionals working and interested in global health, public health, the World Health Organization, HIV/AIDS, global pandemics, the history of medicine, and global health policy. It will also interest those involved in international relations, international development, global affairs and governance, the United Nations, and NGOs.
- Contents
- Introduction -- Part I. Global Mobilization in a Pandemic -- 1. The Response Before the Global Response -- 2. The Launch of the Control Programme on AIDS -- 3. Creating a Global Response -- 4. Assuming Global Leadership -- 5. Building and Coordinating a Multisectoral Response -- 6. Health, Human Rights, and the Global Programme on AIDS -- 7. The Resignation of Jonathan Mann -- Part II. From Mobilization to Managing in a Pandemic -- 8. The Transition -- 9. Enhancing Program Delivery -- 10. Containing the Global Spread of HIV -- 11. Supporting Research -- 12. Addressing Stigma, Discrimination, and Human Rights -- 13. Challenges and Criticisms -- 14. Growing Tensions Among United Nations Agencies -- Part III. Seeking Global Coordination in a Pandemic -- 15. Rethinking Global AIDS Governance -- 16. End of the Global Programme on AIDS and the Launch of UNAIDS -- 17. UNAIDS: Trying to Gain Traction -- 18. UNAIDS: Finding its Place in Congested Waters -- Part IV. Lessons Learned and the Future of the Global Response -- 19. Conclusion -- Appendix 1. Background on the Formation and Structure of the World Health Organization -- Appendix 2. Structure of the United Nations -- Appendix 3. Interviews -- Appendix 4. Establishment of the Joint United Nations Programme on HIV/AIDS (UNAIDS) Timeline -- Appendix 5. World Health Organization 1993 Study of a Joint and co-sponsored United Nations Programme on HIV/AIDS: Synopsis of Options at Global Level -- Appendix 6. World Health Organization 1993 Study of a Joint and co-sponsored United Nations Programme on HIV/AIDS: Synopsis of Options at Country Level -- Appendix 7. United Nations Economic and Social Council Resolution 1994/24 on Joint and co-sponsored Programme on Human Immunodeficiency Virus/Acquired Immunodeficiency Syndrome -- Appendix 8. UNAIDS Technical Support Division of Labor, Summary and Rationale 2005: Division of Responsibility Among UNAIDS co-sponsors -- Glossary of terms.
- Format
- e-Book
- Location
- Online
An International Perspective on Disasters and Children's Mental Health
https://libcat.nshealth.ca/en/permalink/provcat44638
Christina W. Hoven, Lawrence V. Amsel, Sam Tyano, editors.
--Cham:
Springer
, 2019.
- Available Online
- View e-Book
- Location
- Online
This book provides a broad international perspective on the psychological trauma faced by children and adolescents exposed to major disasters, and on the local public health response to their needs. An outstanding quality of the book is that it draws upon the experience of local researchers, clinicians, and public mental health practitioners who dedicated themselves to these children in the wake of overwhelming events. The chapters address exemplary responses to a wide variety of trauma types, …
- Available Online
- View e-Book
- Other Authors
- Hoven, Christina W.
- Amsel, Lawrence V.
- Tyano, Sam
- Other Authors
- World Psychiatric Association
- Responsibility
- Christina W. Hoven, Lawrence V. Amsel, Sam Tyano, editors
- Place of Publication
- Cham
- Publisher
- Springer
- Date of Publication
- 2019
- Physical Description
- 1 online resource (xxxi, 439 p.) : 36 illus., 27 illus. in color
- Series Title
- Integrating psychiatry and primary care
- ISBN
- 9783030158729
- 9783030158712 (Print ed.)
- 9783030158736 (Print ed.)
- 9783030158743 (Print ed.)
- ISSN
- 2522-5693
- Subjects (MeSH)
- Adolescent
- Armed Conflicts
- Child
- Disasters
- Emergency Services, Psychiatric
- Mental Health Services
- Psychological Trauma - therapy
- Stress Disorders, Post-Traumatic - prevention & control
- Abstract
- This book provides a broad international perspective on the psychological trauma faced by children and adolescents exposed to major disasters, and on the local public health response to their needs. An outstanding quality of the book is that it draws upon the experience of local researchers, clinicians, and public mental health practitioners who dedicated themselves to these children in the wake of overwhelming events. The chapters address exemplary responses to a wide variety of trauma types, including severe weather, war, industrial catastrophes, earthquakes, and terrorism. Because disasters do not recognize geographic, economic, or political boundaries, the chapters have been selected to reflect the diverse global community’s attempt to respond to vulnerable children in the most challenging times. The book, thus, examines a diverse range of healthcare systems, cultural settings, mental health infrastructure, government policies, and the economic factors that have played an important role in responses to traumatic events. The ultimate goal of this book is to stimulate future international collaborations and interventions that will promote children’s mental health in the face of disaster.
- Contents
- Part I. Children in Disasters: An Overview -- 1. The Impact of Trauma on the Fetus, the Infant, and the Child -- 2. Public Health Responses and Therapeutic Interventions -- Part II. Terrorism -- 3. Boko Haram Insurgency and Nigeria’s Mental Health Response -- 4. The Army Public School Massacre in Peshawar, Pakistan -- 5. Children’s Mental Health After 9/11 and the Boston Marathon Bombing -- Part III. Earthquakes and Tsunamis -- 6. Chilean Children 7 Years After the 2010 Earthquake and Tsunami -- 7. Children’s Exposure to China’s Wenchuan Earthquake: Mental Health Sequelae -- 8. Children’s Mental Health Following the Haiti 2010 Earthquake -- Part IV. Nuclear Events -- 9. Japan’s Fukushima Daiichi Nuclear Power Plant Accident -- 10. Responses to Children’s Mental Health Needs Following the Chernobyl Disaster -- 11. Child and Adolescent Suicide Risk Following the Chernobyl Disaster -- Part V. Extreme Weather and Geography -- 12. Psychopathology in Children and Their Caregivers Following America’s Hurricane Katrina -- 13. Use of Geographic Information Systems in Trauma Research -- Part VI. Parents and Children in Times of War -- 14. The Armenian Genocide and Its Intergenerational Effects -- 15. Promoting Mental Health for Children and Their Caregivers Affected by the Syrian Conflict -- 16. The Intergenerational Aftermath of War Captivity: The Israeli Experience -- Part VII. Refugees and Human Rights -- 17. Children Seeking Asylum: Mental Health and Human Rights -- 18. Children and Armed Conflict: A Child Rights-based Approach to Prevention and Mitigation -- Part VIII. Future Approaches -- 19. Preventing Future Terrorism: Intervening on Youth Radicalization -- 20. Mass Disasters and Children’s Mental Health: How General Systems Theory and Behavioral Economics Can Help.
- Format
- e-Book
- Location
- Online
Artificial Nutrition and Hydration : The New Catholic Debate
https://libcat.nshealth.ca/en/permalink/provcat40617
edited by Christopher Tollefsen.
--Dordrecht:
Springer
, c2008.
- Available Online
- View e-Book
- Location
- Online
Pope John Paul II surprised much of the medical world in 2004 with his strongly worded statement insisting that patients in a persistent vegetative state should be provided with nutrition and hydration. While many Catholic bioethicists defended the Pope's claim that the life of all human beings, even those in a persistent vegetative state or a coma, was worth protecting, others argued that the Pope's position marked a shift from the traditional Catholic teaching on the withdrawal of medical tre…
- Available Online
- View e-Book
- Other Authors
- Tollefsen, Christopher
- Responsibility
- edited by Christopher Tollefsen
- Place of Publication
- Dordrecht
- Publisher
- Springer
- Date of Publication
- c2008
- Physical Description
- 1 online resource (xii, 229 p.)
- Series Vol.
- 93
- 5
- Series Title
- Philosophy and medicine
- Catholic studies in bioethics
- ISBN
- 9781402062070
- 9781402062063 (print ed.)
- Subjects (MeSH)
- Catholicism
- Fluid Therapy - ethics
- Nutritional Support - ethics
- Persistent Vegetative State - therapy
- Religion and Medicine
- Terminal Care - ethics
- Abstract
- Pope John Paul II surprised much of the medical world in 2004 with his strongly worded statement insisting that patients in a persistent vegetative state should be provided with nutrition and hydration. While many Catholic bioethicists defended the Pope's claim that the life of all human beings, even those in a persistent vegetative state or a coma, was worth protecting, others argued that the Pope's position marked a shift from the traditional Catholic teaching on the withdrawal of medical treatment at the end of life. The debate among Catholic bioethicists over the Pope's statement only grew more intense during the controversy surrounding Terry Schiavo's death in 2005, as bioethicists on both sides of the debate argued about the legitimacy of removing her feeding tubes. This collection of essays by some of the most prominent Catholic bioethicists addresses the Pope's statements, the moral issues surrounding artificial feeding and hydration, the refusal of treatment, and the ethics of care for those at the end of life.
- Contents
- Part I. The Issue -- Why do Unresponsive Patients Still Matter? -- Are We Morally Obliged to Feed PVS Patients Till Natural Death? -- Caring for Persons in the "Persistent Vegetative State" and Pope John Paul II's March 20 2004 Address "On Life-Sustaining Treatments and the Vegetative State" -- Food and Fluids: Human Law, Human Rights and Human Interests -- Part II. Philosophers Address the Issue -- Quality of Life and Assisted Nutrition -- Towards Ethical Guidelines for the Use of Artificial Nutrition and Hydration -- Understanding the Ethics of Artificially Providing Food and Water -- The Ethics of Pope John Paul's Allocution on Care of the PVS Patient: A Response to J.L.A. Garcia -- Part III. Symposium on the Views of Fr. Kevin O'Rourke, O.P. -- Reflections on the Papal Allocution Concerning Care For PVS Patients -- The Papal Allocution Concerning Care for PVS Patients: A Reply to Fr. O'Rourke -- Response to Patrick Lee -- The Morality of Tube Feeding PVS Patients: A Critique of the View of Kevin O'Rourke, O.P. -- Part IV. Concluding Reflections -- Ten Errors Regarding End of Life Issues, and Especially Artificial Nutrition and Hydration.
- Format
- e-Book
- Location
- Online
Asian immigrants in North America with HIV/AIDS : stigma, vulnerabilities and human rights
https://libcat.nshealth.ca/en/permalink/provcat34053
AKM Ahsan Ullah, Ahmed Shafiqul Huque.
--Singapore:
Springer
, c2014.
- Available Online
- View e-Book
- Location
- Online
This book explores a number of issues related to the stigma arising from HIV/AIDS infection, perceived or actual discrimination from the community and society, and the extent of vulnerabilities for infected Asian refugees and immigrants. It assesses the health care and treatment regimen for HIV/AIDS accessed by immigrants and refugee claimants in North America, including treatments offered by the health-care system and ethnic communities, and their perceptions and biases relating to HIV/AIDS is…
- Available Online
- View e-Book
- Author
- Ullah, A. K. M. Ahsan
- Other Authors
- Huque, Ahmed Shafiqul
- Responsibility
- AKM Ahsan Ullah, Ahmed Shafiqul Huque
- Place of Publication
- Singapore
- Publisher
- Springer
- Date of Publication
- c2014
- Physical Description
- 1 online resource (xix, 198 pages)
- ISBN
- 9789812871190 (electronic bk.)
- 9789812871183
- Subjects (MeSH)
- Acquired Immunodeficiency Syndrome
- Asian Continental Ancestry Group
- Emigrants and Immigrants
- HIV Infections
- Health Knowledge, Attitudes, Practice
- Minority Health
- Social Stigma
- Socioeconomic Factors
- Other Subjects
- Canada
- Abstract
- This book explores a number of issues related to the stigma arising from HIV/AIDS infection, perceived or actual discrimination from the community and society, and the extent of vulnerabilities for infected Asian refugees and immigrants. It assesses the health care and treatment regimen for HIV/AIDS accessed by immigrants and refugee claimants in North America, including treatments offered by the health-care system and ethnic communities, and their perceptions and biases relating to HIV/AIDS issues. On another level, the book identifies the ways in which HIV-sufferer immigrants and refugees/refugee claimants from Asia are vulnerable to discrimination due to 1) lack of information about HIV/AIDS incidence in the community; 2) inability of the health system to respond appropriately; and 3) the community's need for introspection on their own health issues. This book reveals the dynamics that influence choice, behavior, and lifestyle of HIV sufferer immigrants, adds to the existing knowledge about refugees and migrants, and proposes a unified theory of discrimination and stigmatization within the context of human rights. In addition, the book presents a number of policy recommendations based on empirical findings with a view to helping reshape polices regarding refugee HIV sufferers and their social ramifications. This book will be of interest to researchers and students in any field from social sciences, health and psychology, as well as practitioners in the field of development and public policy.
- Contents
- 1. Refugees, Immigrants and HIV/AIDS -- 2. Understanding and Exploring HIV/AIDS and Discrimination -- 3. Poverty, Migrants and HIV/AIDS in Canada -- 4. Discrimination, Xenophobia and Stigmatization -- 5. Vulnerability and Resilience in Living with HIV/AIDS -- 6. Managing the Crisis and Policy Directions.
- Format
- e-Book
- Location
- Online
Assertiveness
https://libcat.nshealth.ca/en/permalink/chpams34618
Nova Scotia Health Authority. Mental Health and Addictions Program.
Halifax, NS:
Nova Scotia Health Authority
, 2019.
- Pamphlet Number
- 0740
- Available Online
- View Pamphlet
Being assertive means standing up for yourself and your rights. On the other hand, being aggressive means standing up for your rights while violating another person's rights. Sometimes it is hard to assert ourselves with others. This 1 page sheet outlines some ways to act and respond assertively.
- Available Online
- View Pamphlet
- Corporate Author
- Nova Scotia Health Authority. Mental Health and Addictions Program
- Place of Publication
- Halifax, NS
- Publisher
- Nova Scotia Health Authority
- Date of Publication
- 2019
- Format
- Pamphlet
- Language
- English
- Physical Description
- 1 electronic document ([1] p.) : digital, PDF file
- Subjects (MeSH)
- Assertiveness
- Mental Health
- Subjects (LCSH)
- Assertiveness (Psychology)
- Mental health
- Abstract
- Being assertive means standing up for yourself and your rights. On the other hand, being aggressive means standing up for your rights while violating another person's rights. Sometimes it is hard to assert ourselves with others. This 1 page sheet outlines some ways to act and respond assertively.
- Responsibility
- Prepared by: Mental Health and Addictions Program
- Pamphlet Number
- 0740
Autistic Community and the Neurodiversity Movement : Stories from the Frontline
https://libcat.nshealth.ca/en/permalink/provcat44710
Steven K. Kapp, editor.
--Singapore:
Palgrave Macmillan
, c2020.
- Available Online
- View e-Book
- Access
- Open access
- Location
- Online
This open access book marks the first historical overview of the autism rights branch of the neurodiversity movement, describing the activities and rationales of key leaders in their own words since it organized into a unique community in 1992. Sandwiched by editorial chapters that include critical analysis, the book contains 19 chapters by 21 authors about the forming of the autistic community and neurodiversity movement, progress in their influence on the broader autism community and field, a…
- Available Online
- View e-Book
- Other Authors
- Kapp, Steven K.
- Responsibility
- Steven K. Kapp, editor
- Place of Publication
- Singapore
- Publisher
- Palgrave Macmillan
- Date of Publication
- c2020
- Physical Description
- 1 online resource (xix, 330 p.) : 7 illus., 6 illus. in color
- ISBN
- 9789811384370
- 9789811384363 (Print ed.)
- 9789811384387 (Print ed.)
- 9789811384394 (Print ed.)
- Subjects (MeSH)
- Autism Spectrum Disorder
- Cultural Diversity
- Human Rights
- Mental Health - ethics
- Minority Health
- Psychology, Social - ethics
- Subjects (LCSH)
- People with disabilities
- Child psychiatry
- Social work
- Medical ethics
- Abstract
- This open access book marks the first historical overview of the autism rights branch of the neurodiversity movement, describing the activities and rationales of key leaders in their own words since it organized into a unique community in 1992. Sandwiched by editorial chapters that include critical analysis, the book contains 19 chapters by 21 authors about the forming of the autistic community and neurodiversity movement, progress in their influence on the broader autism community and field, and their possible threshold of the advocacy establishment. The actions covered are legendary in the autistic community, including manifestos such as “Don’t Mourn for Us”, mailing lists, websites or webpages, conferences, issue campaigns, academic project and journal, a book, and advisory roles. These actions have shifted the landscape toward viewing autism in social terms of human rights and identity to accept, rather than as a medical collection of deficits and symptoms to cure.
- Contents
- 1. Introduction -- Part I: Gaining Community -- 2. Historicizing Jim Sinclair’s “Don’t Mourn for Us”: A Cultural and Intellectual History of Neurodiversity’s Origins -- 3. From Exclusion to Acceptance: Independent Living on the Autistic Spectrum -- 4. Autistic People Against Neuroleptic Abuse -- 5. Autistics.org and Finding our Voices as an Activist Movement -- 6. Losing -- Part II: Getting Heard -- 7. Neurodiversity.com: A Decade of Advocacy -- 8. Autscape -- 9. The Autistic Genocide Clock -- 10. Shifting the System: AASPIRE and the Loom of Science and Activism -- 11. Out of Searching Comes New Vibrance -- 12. Two Winding Parent Paths to Neurodiversity Advocacy -- 13. Lobbying Autism’s Diagnostic Revision in the DSM-5 -- 14. Torture in the Name of Treatment: The Mission to Stop the Shocks in the Age of Deinstitutionalization -- 15. Autonomy, the Critical Journal of Interdisciplinary Autism Studies -- 16. My Time with Autism Speaks -- 17. Covering the Politics of Neurodiversity: And Myself -- 18. “A Dream Deferred” No Longer: Backstory of the First Autism and Race Anthology -- Part III: Entering the Establishment? -- 19. Changing Paradigms: The Emergence of the Autism/Neurodiversity Manifesto -- 20. From Protest to Taskforce -- 21. Critiques of the Neurodiversity Movement -- 22. Conclusion.
- Access
- Open access
- Format
- e-Book
- Location
- Online
Biobanks and tissue research
https://libcat.nshealth.ca/en/permalink/provcat40978
Christian Lenk, Judit Sándor, Bert Gordijn, editors.
--Dordrecht:
Springer
, c2011.
- Available Online
- View e-Book
- Location
- Online
- Available Online
- View e-Book
- Other Authors
- Lenk, Christian
- Sándor, Judit, 1962-
- Gordijn, Bert, 1965-
- Responsibility
- Christian Lenk, Judit Sándor, Bert Gordijn, editors
- Place of Publication
- Dordrecht
- Publisher
- Springer
- Date of Publication
- c2011
- Physical Description
- 1 online resource (viii, 238 p. : ill.)
- Series Vol.
- v. 8
- Series Title
- International library of ethics, law and technology
- ISBN
- 9789400716735
- 9789400716728 (print ed.)
- Subjects (MeSH)
- Bioethical Issues
- Biological Specimen Banks - ethics
- Biological Specimen Banks - legislation & jurisprudence
- Ethics, Research
- Patient Rights
- Contents
- Part I Biobanks, Tissue Research and the Public -- 1. Introduction -- 2. Public Trust and Public Bodies: The Regulation of the Use of Human Tissue for Research in the United Kingdom -- 3. Biobanks and Research: Scientific Potential and Regulatory Challenge -- 4. A Sense of Entitlement: Individual vs. Public Interest in Human Tissue -- 5. Social Aspects of Biobanking: Beyond the Public/Private Distinction and Inside the Relationship Between the Body and Identity -- Part II. The Rights of Donors and Patients -- 6. One Sample, One Share! A Proposal to Redress an Inequity with Equity -- 7. Research on Human Biological Materials: What Consent Is Needed, and When -- 8. Reconsidering Consent and Biobanking -- 9. What’s Wrong with Forensic Uses of Biobanks? -- Part III. Regulation of Tissue Research -- 10. A Unified European Approach on Tissue Research and Biobanking? A Comparison -- 11. Ireland and the United Kingdom’s Approaches to Regulation of Research Involving Human Tissue -- 12. Legal and Ethical Aspects of Biobanks for Research in the European-Mediterranean Area -- 13. The Circulation of Human Body Parts and Products: When Exclusive Property Rights Mask the Issue of Access -- 14. Anonymity and Privacy in Biobanking.
- Format
- e-Book
- Location
- Online
Bioethical Controversies in Pediatric Cardiology and Cardiac Surgery
https://libcat.nshealth.ca/en/permalink/provcat45508
Constantine Mavroudis, J. Thomas Cook, Constantine D. Mavroudis, editors.
--Cham:
Springer
, c2020.
- Available Online
- View e-Book
- Location
- Online
This title reviews the bioethical issues in congenital heart disease and other difficult pediatric cardiology and cardiac surgical situations. It provides considered opinions and recommendations as to the preferred actions to take in these cases, stressing the importance of making informed decisions that are bioethically sound and doing so using considered reasoning of all the related sensitive issues. Bioethical Controversies in Pediatric Cardiology and Cardiac Surgery provides detailed recomm…
- Available Online
- View e-Book
- Other Authors
- Mavroudis, Constantine
- Cook, J. Thomas
- Mavroudis, Constantine D.
- Responsibility
- Constantine Mavroudis, J. Thomas Cook, Constantine D. Mavroudis, editors
- Place of Publication
- Cham
- Publisher
- Springer
- Date of Publication
- c2020
- Physical Description
- 1 online resource (x, 279 p.) : 6 illus., 5 illus. in color
- ISBN
- 9783030356606
- 9783030356590 (Print ed.)
- 9783030356613 (Print ed.)
- 9783030356620 (Print ed.)
- Subjects (MeSH)
- Bioethical Issues
- Cardiology - ethics
- Pediatrics - ethics
- Specialty
- Cardiology
- Ethics
- Pediatrics
- Abstract
- This title reviews the bioethical issues in congenital heart disease and other difficult pediatric cardiology and cardiac surgical situations. It provides considered opinions and recommendations as to the preferred actions to take in these cases, stressing the importance of making informed decisions that are bioethically sound and doing so using considered reasoning of all the related sensitive issues. Bioethical Controversies in Pediatric Cardiology and Cardiac Surgery provides detailed recommendations on potential solutions to make bioethical decisions in difficult clinical scenarios. There is particular emphasis on controversies involving surgery for hypoplastic left heart syndrome, futility, informed consent, autonomy, genomics, and beneficence. It is intended for use by a wide range of practitioners, including congenital heart surgeons, pediatric cardiologists, pediatric intensivists, nurse practitioners, physician’s assistants, and clinical ethicists.
- Contents
- Introduction to Biomedical Ethics -- Autonomy and the Principles of Medical Practice -- Informed Consent -- Conflict of Interest -- Ethics of Surgical Innovation for Congenital Heart Diseases -- Ethical Considerations in Patients with Extracardiac or Genetic Anomalies -- Medical Futility: When Further Therapy is Hopeless -- Ethical Issues Surrounding the Use of Post Cardiotomy ECMO -- Rare Diagnoses and Allocation of Precious Resources -- Abortion Rights -- Fetal Cardiac Interventions -- Ethical Considerations in the Transcatheter Management of Congenital Heart Disease -- Informed Consent in Fetal Hypoplastic Left Heart Syndrome -- Role of Ethics Consultation in Pediatric Congenital Heart Disease -- Ethics, Justice, and the Province of American Medicine: A Discussion of the Politicalization of the Duty to Care for Pediatric Heart Transplant Patients Who are in the Country Illegally -- The Unintended Consequences of Public Reporting -- Ethical Considerations in Pediatric Heart Transplantation -- Between Death and Donation: Ethical Considerations in Pediatric Heart Transplantation -- Active and Passive Euthanasia in the Context of Severe Congenital Heart Disease -- Ethical and Legal Controversies Concerning Consolidation of Congenital Heart Programs in The United States of America.
- Format
- e-Book
- Location
- Online
Canadian child health law : health rights and risks of children
https://libcat.nshealth.ca/en/permalink/provcat52933
[By] Bartha Maria Knoppers.
--Toronto, ON:
Thompson Educational Pub.
, 1992.
- Call Number
- WA 33 DC2 1992
- Location
- IWK Health Sciences Library
- Call Number
- WA 33 DC2 1992
- Author
- Knoppers, Bartha Maria
- Responsibility
- [By] Bartha Maria Knoppers
- Place of Publication
- Toronto, ON
- Publisher
- Thompson Educational Pub.
- Date of Publication
- 1992
- Physical Description
- 330 p.
- ISBN
- 1550770357
- Subjects (MeSH)
- Child Health Services - legislation & jurisprudence
- Child Welfare - legislation & jurisprudence
- Canada
- Format
- Book
- Location
- IWK Health Sciences Library
- Copies
- 1
- Loan Period
- 2 weeks
Canadian patient's book of rights, The : a consumer's guide to Canadian health
https://libcat.nshealth.ca/en/permalink/provcat52960
[by] Lorne E. Rozovsky.
(rev. and updated)
--Toronto, ON:
Doubleday Canada
, 1994.
- Call Number
- W 32.5 DC2 R893 1994
- Location
- IWK Health Sciences Library
- Call Number
- W 32.5 DC2 R893 1994
- Author
- Rozovsky, Lorne E.
- Responsibility
- [by] Lorne E. Rozovsky
- Edition
- rev. and updated
- Place of Publication
- Toronto, ON
- Publisher
- Doubleday Canada
- Date of Publication
- 1994
- Physical Description
- 242 p.
- ISBN
- 385254490
- Subjects (MeSH)
- Patient Advocacy - legislation & jurisprudence
- Legislation, Medical
- Ethics, Medical
- Consumer Satisfaction
- Patient Satisfaction
- Canada
- Notes
- Consumer health information.
- "Endorsed by the Canadian Pharmaceutical Association".
- Format
- Book
- Location
- IWK Health Sciences Library
- Copies
- 1
- Loan Period
- 2 weeks
Cancer in Adolescents and Young Adults
https://libcat.nshealth.ca/en/permalink/provcat41326
Archie Bleyer, Ronald Barr, Lynn Ries, Jeremy Whelan, Andrea Ferrari, editors.
(Second edition)
--Cham:
Springer
, 2017.
- Available Online
- View e-Book
- Location
- Online
This is the second edition of the only book to be devoted exclusively to the total cancer picture in adolescents and young adults (AYA), now expanded from the age range 15-29 to that of 15-39 years. For each of the diverse spectrum of cancers encountered in the AYA group, the epidemiology, natural progression, diagnostic approaches, and treatment options are described, with special emphasis on strategies for early detection and prevention. Comparison is made with management of both younger and …
- Available Online
- View e-Book
- Other Authors
- Bleyer, Archie
- Barr, Ronald
- Ries, Lynn
- Whelan, Jeremy
- Ferrari, Andrea
- Responsibility
- Archie Bleyer, Ronald Barr, Lynn Ries, Jeremy Whelan, Andrea Ferrari, editors
- Edition
- Second edition
- Place of Publication
- Cham
- Publisher
- Springer
- Date of Publication
- 2017
- Physical Description
- 1 online resource (xxv, 825 pages) : 250 illus., 212 illus. in color
- Series Title
- Pediatric oncology
- ISBN
- 9783319336794
- 9783319336770 (print ed.)
- ISSN
- 1613-5318
- Subjects (MeSH)
- Neoplasms
- Young Adult
- Abstract
- This is the second edition of the only book to be devoted exclusively to the total cancer picture in adolescents and young adults (AYA), now expanded from the age range 15-29 to that of 15-39 years. For each of the diverse spectrum of cancers encountered in the AYA group, the epidemiology, natural progression, diagnostic approaches, and treatment options are described, with special emphasis on strategies for early detection and prevention. Comparison is made with management of both younger and older patients, and model programs are presented that address common diagnostic, staging, treatment, and psychosocial shortcomings in the AYA group. Detailed attention is also paid to principles and practices of care, with consideration of psychosocial and quality of life issues, social support systems, rehabilitation, late effects, insurance, and economic aspects of health care, among other topics. The authors make compelling arguments for integrated strategies that allow young adults to benefit from the combined expertise of pediatric and adult oncologists in systems that identify both the complex disease and the social issues specific to this population. The proposed models of care include relationships with other specialties that do not specifically target this age group, i.e., infectious disease, endocrinology, pulmonary medicine, nephrology, gastroenterology, thoracic and abdominal surgery, urology, otolaryngology, and neurosurgery. New patterns of communication are advocated and endorsed as essential for productive interaction involving these specialties. References are extensive and are oriented toward users in pediatric hematology-oncology medical oncology, radiation oncology, surgical oncology, gynecologic oncology, oncology nursing, psycho-oncology, social work, epidemiology, public health and health services research. The contributing authors are from the United States, the United Kingdom, Canada, Italy, France, Israel, Switzerland and Australia, Germany, Japan and the Netherlands.
- Contents
- 1. Adolescent and Young Adult Oncology: Historical and Global Perspectives -- 2. Cancer Incidence, Survival, and Mortality Among Adolescents and Young Adults -- 3. The Biology of AYA Cancers -- 4. Non-Hodgkin Lymphoma -- 5. Hodgkin Lymphoma -- 6. Acute Myelogenous Leukemia -- 7. Acute Lymphoblastic Leukemia -- 8. Breast Cancer Before 40 -- 9. Thyroid Cancer -- 10. Malignant Melanoma in the Adolescent and Young Adult (AYA) Population -- 11. Cancer of the Ovary, Uterus, and Cervix -- 12. Testicular Cancer -- 13. Colorectal and Anal Tumors -- 14. Central Nervous System Tumors -- 15. Soft Tissue Sarcoma -- 16. Bone Sarcomas in the Adolescent and Young Adult Population -- 17. Cancer of the Kidney, Bladder, and Prostate -- 18. Liver Tumors -- 19. Other Carcinomas -- 20. Access and Models of Care -- 21. Clinical Trials -- 22. Adherence to Treatment Regimes in Adolescent and Young Adult Cancer Patients -- 23. Psychosocial Issues in Adolescent and Young Adult Patients and Survivors -- 24. Sexual Consequences of Cancer and Its Treatment in Adolescents and Young Adults -- 25. Fertility Preservation in the Pediatric Setting -- 26. Rehabilitation and Exercise -- 27. Making Ends Meet: Financial Issues from the Perspectives of Patients and Their Health-Care Team -- 28. Adolescent and Young Adult Cancer Survivors: Late Effects of Treatment -- 29. Promoting Health and Care Transitions in the Long-Term AYA Survivor -- 30. Health-Related Quality of Life -- 31. Palliative Care -- 32. Addressing the Ethical Challenges for Young Adults, from a Rights-Based Perspective -- 33. Economic Evaluation in Adolescent and Young Adult Cancer: Methodological Considerations and the State of the Science -- 34. AYA Advocacy in Action – Achievements, Lessons, and Challenges from a Global Movement for Change -- 35. Conclusions, Perspectives, and Future Considerations -- Erratum.
- Format
- e-Book
- Location
- Online
Children's rights in the practice of family law
https://libcat.nshealth.ca/en/permalink/provcat53026
edited by Barbara landau.
--Toronto, ON:
Carswell
, 1986.
- Call Number
- WA 320 DC2 L16 1986
- Location
- IWK Health Sciences Library
- Call Number
- WA 320 DC2 L16 1986
- Author
- Landau, Barbara
- Responsibility
- edited by Barbara landau
- Place of Publication
- Toronto, ON
- Publisher
- Carswell
- Date of Publication
- 1986
- Physical Description
- 378 p.
- ISBN
- 459390406
- Subjects (MeSH)
- Patient Advocacy - legislation & jurisprudence
- Child Welfare - legislation & jurisprudence
- Canada
- Format
- Book
- Location
- IWK Health Sciences Library
- Copies
- 1
- Loan Period
- 2 weeks
A child's right to a healthy environment
https://libcat.nshealth.ca/en/permalink/provcat40973
James Garbarino, Garry Sigman, editors.
--New York:
Springer
, c2010.
- Available Online
- View e-Book
- Location
- Online
- Available Online
- View e-Book
- Other Authors
- Garbarino, James
- Sigman, Garry
- Responsibility
- James Garbarino, Garry Sigman, editors
- Place of Publication
- New York
- Publisher
- Springer
- Date of Publication
- c2010
- Physical Description
- 1 online resource (xii, 254 p. : ill.)
- Series Vol.
- v. 1
- ISBN
- 9781441967916
- 9781441967893 (print ed.)
- Subjects (MeSH)
- Child Welfare
- Human Rights
- Social Environment
- Contents
- Part I. Perspectives on Healthy Environments for Children -- 1. “To Such as These, the Kingdom of Heaven Belongs”: Religious Faith as a Foundation for Children’s Rights -- 2. Preventing Childhood Malaria: Strategies That Work Today and Directions for the Future -- 3. A Case Study of a Partnership in Chicago to Prevent Childhood Lead Poisoning -- Part II. Why Is Protecting the Human Rights of Children so Difficult? -- 4. Spare the Rod: Why Are More American Children Victims and Perpetrators of Violence Than Those of Any Other Developed Country? -- 5. Promoting a Protective Environment for Children Affected by Disaster and War -- 6. When Rights and Needs Collide -- Part III. Human Rights as a Tool for Social Change -- 7. The UN Convention on the Rights of the Child: An Instrument for Creating a Healthy Environment for the Child -- 8. The Right to a Family Environment for Children of Prisoners -- 9. A Child’s Right to an Environment that Prevents Obesity: Ethical Considerations -- 10. Anchoring and Empowering Children: A Child’s Right to Participation Within a Healthy Environment -- Part IV. Cultural and Social Impediments to a Healthy Environment for Children -- 11. Child Slavery and the Global Economy: Historical Perspectives on a Contemporary Problem -- 12. In Harm’s Way in America: The Burden of Gun Violence -- 13. The Right to a Healthy Social Environment: Protecting Children from Social Toxicity.
- Format
- e-Book
- Publication Type
- Congress
- Location
- Online
Classic cases in medical ethics : accounts of cases that have shaped medical ethics, with philosophical, legal, and historical backgrounds
https://libcat.nshealth.ca/en/permalink/provcat14073
Gregory E. Pence.
(4th ed.)
--Boston, MA:
McGraw-Hill
, c2004.
- Call Number
- W 50 P397c 2004
- Location
- Aberdeen Hospital
- Call Number
- W 50 P397c 2004
- Author
- Pence, Gregory E.
- Responsibility
- Gregory E. Pence
- Edition
- 4th ed.
- Place of Publication
- Boston, MA
- Publisher
- McGraw-Hill
- Date of Publication
- c2004
- Physical Description
- 1 v. (various pagings) : ill.
- ISSN
- 9780072829358
- 0072829354
- Subjects (MeSH)
- Bioethical Issues
- Bioethical Issues - legislation & jurisprudence
- Ethics, Clinical - history
- Ethics, Medical - history
- Ethics, Research - history
- Patient Rights - legislation & jurisprudence
- Social Justice - ethics
- Subjects (LCSH)
- Bioethics--Case studies
- Medical ethics--Case studies
- Format
- Book
- Location
- Aberdeen Hospital
Clinical Medical Ethics : Landmark Works of Mark Siegler, MD
https://libcat.nshealth.ca/en/permalink/provcat41735
Laura Weiss Roberts, Mark Siegler, editors.
--Cham:
Springer
, 2017.
- Available Online
- View e-Book
- Location
- Online
This instant gold standard title is a major contribution to the field of clinical medical ethics and will be used widely for reference and teaching purposes for years to come. Throughout his career, Mark Siegler, MD, has written on topics ranging from the teaching of clinical medical ethics to end-of-life decision-making and the ethics of advances in technology. With more than 200 journal publications and 60 book chapters published in this area over the course of his illustrious career, Dr. Sie…
- Available Online
- View e-Book
- Other Authors
- Roberts, Laura Weiss
- Siegler, Mark
- Responsibility
- Laura Weiss Roberts, Mark Siegler, editors
- Place of Publication
- Cham
- Publisher
- Springer
- Date of Publication
- 2017
- Physical Description
- 1 online resource (xvii, 419 pages) : 17 illus., 8 illus. in color
- ISBN
- 9783319538754
- 9783319538730 (print ed.)
- Subjects (MeSH)
- Ethics, Medical
- Ethics, Clinical
- Abstract
- This instant gold standard title is a major contribution to the field of clinical medical ethics and will be used widely for reference and teaching purposes for years to come. Throughout his career, Mark Siegler, MD, has written on topics ranging from the teaching of clinical medical ethics to end-of-life decision-making and the ethics of advances in technology. With more than 200 journal publications and 60 book chapters published in this area over the course of his illustrious career, Dr. Siegler has become the pre-eminent scholar and teacher in the field. Indeed his work has had a profound impact on a range of therapeutic areas, especially internal medicine, pediatrics, surgery, oncology, and medical education. Having grown steadily in importance the last 30 years, clinical ethics examines the practical, everyday ethical issues that arise in encounters among patients, doctors, nurses, allied health workers, and health care institutions. The goal of clinical ethics is to improve patient care and patient outcomes, and almost every large hospital now has an ethics committee or ethics consultation service to help resolve clinical ethical problems; and almost every medical organization now has an ethics committee and code of ethics. Most significantly, clinical ethics discussions have become a part of the routine clinical discourse that occurs in outpatient and inpatient clinical settings across the country. This seminal collection of 46 landmark works written by Dr. Siegler with colleagues throughout his career was edited by Dr. Laura Weiss Roberts and by Dr. Siegler. Dr. Roberts is a prominent psychiatric ethicist and physician-scientist as well as a mentee and longtime collaborator of Dr. Siegler. The text is organized around five themes of foundational scholarship: restoring and transforming the ethical basis of modern clinical medicine, the doctor-patient relationship, education and professionalism, end-of-life care, and clinical innovation.With introductory perspectives by a group of renowned scholars in medicine, Clinical Medical Ethics: Landmark Works of Mark Siegler, MD explains the field authoritatively and comprehensively and will be of invaluable assistance to all clinicians and scholars concerned with clinical ethics. .
- Contents
- Part I -- Restoring and Transforming the Ethical Basis of Modern Clinical Medicine -- 1. An Introduction from Laura Weiss Roberts, M.D., M.A. -- 2. A Perspective from Mark Siegler, M.D. -- 3. A Perspective from Daniel P. Sulmasy, M.D., Ph.D. -- 4. A Perspective from Dana Levinson, M.P.H., Holly J. Humphrey, M.D., and Kenneth S. Polonsky, M.D. -- 5. A Perspective from Jordan J. Cohen, M.D. -- 6. A Perspective from Peter A. Singer, M.D. -- Part II Landmark Works on Clinical Medical Ethics by Mark Siegler, M.D. -- 7. Foundational Scholarship -- 7.1 Clinical ethics and clinical medicine (1979) -- 7.2 Decision-making strategy for clinical ethical problems in medicine (1982) -- 7.3 An ethics consultation service in a teaching hospital. Utilization and evaluation (1988) -- 7.4 Clinical medical ethics (1990) -- 7.5 Ethics committees and consultants (1990) -- 7.6 Future directions in clinical ethics (1991) -- 7.7 Clinical ethics (1991) -- 7.8 Clinical ethics in the practice of medicine (1996) -- 7.9 Five major themes in bioethics (1997) -- 7.10 The contributions of clinical ethics to patient care (1997) -- 8. The Doctor-Patient Relationship -- 8.1 Searching for moral certainty in medicine: a proposal for a new model of the doctor-patient encounter 1981) -- 8.2 Clinical intuition: a procedure for balancing the rights of patients and the responsibilities of physicians (1981) -- 8.3 The doctor-patient encounter and its relationship to theories of health and disease (1981) -- 8.4 The physician-patient accommodation: a central event in clinical medicine (1982) -- 8.5 Confidentiality in medicine: a decrepit concept (1982) -- 8.6 Medical consultations in the context of the physician-patient relationship (1982) -- 8.7 Metaphors and models of doctor-patient relationships: their implications for autonomy (1984) -- 8.8 The progression of medicine: from physician paternalism to patient autonomy to bureaucratic parsimony (1985) -- 8.9 Learning from our patients: one participants impact on clinical trial research and informed consent (1997) -- 8.10 The physician-surrogate relationship (2007) -- 9. Education and Professionalism -- 9.1 A legacy of Osler: teaching clinical ethics at the bedside (1978) -- 9.2 Basic curricular goals in medical ethics: the DeCamp conference on the teaching of medical ethics (1985) -- 9.3 Fellowship training programs in clinical ethics (1988) -- 9.4 Development of a teaching program in clinical medical ethics at the University of Chicago (1989) -- 9.5 Internal medicine residents' preferences regarding medical ethics education (1989) -- 9.6 Caring for medical students as patients (1990) -- 9.7 Teaching clinical ethics (1990) -- 9.8 Medical students as patients: a pilot study of their health care needs, practices, and concerns (1996) -- 9.9 What and how psychiatry residents at ten training programs wish to learn about ethics (1996) -- 9.10 Clinical ethics teaching in psychiatric supervision (1996) -- 9.11 Training doctors for professionalism: some lessons from teaching clinical medical ethics (2002) -- 10. End-of-Life Care -- 10.1 Pascal's wager and the hanging of crepe (1975) -- 10.2 Critical illness: the limits of autonomy (1977) -- 10.3 Brain death and live birth (1982) -- 10.4 Against the emerging stream: should fluids and nutritional support be discontinued? (1985) -- 10.5 Euthanasia: a critique (1990) -- 10.6 Elective use of life-sustaining treatments in internal medicine (1991) -- 10.7 Intimacy and caring: the legacy of Karen Ann Quinlan (1993) -- 10.8 The rise and fall of the futility movement (2000) -- 11. Clinical Innovation 11.1 Ethical issues in growth hormone therapy (1989) -- 11.2 Orthopedic surgeons' attitudes and practices concerning the treatment of patients with human immunosuppressive virus infection (1989) -- 11.3 Ethics of liver transplantation with living donors (1989) -- 11.4 Bone marrow transplantation for sickle cell disease; a study of parentsÇÖ decisions (1991) -- 11.5 Ethical justification for living liver donation (1992) -- 11.6 Transplantation of liver grafts from living donors into adults: too much, too soon (2001) -- 11.7 Elective surgical patients as living organ donors: a clinical and ethical innovation (2009) -- Appendix.
- Format
- e-Book
- Location
- Online
Clinical Trials in Latin America : Where Ethics and Business Clash
https://libcat.nshealth.ca/en/permalink/provcat39618
Nuria Homedes, Antonio Ugalde, editors.
--Cham:
Springer
, c2014.
- Available Online
- View e-Book
- Location
- Online
The outsourcing of clinical trials to Latin America by the transnational innovative pharmaceutical industry began about twenty years ago. Using archival information and field work in Argentina, Brazil, Costa Rica, Mexico and Peru, the authors discuss the regulatory contexts and the ethical dimensions of human experimentation in the region. More than 80% of all clinical trials in the region take place in these countries, and the European Medicines Agency has defined them as priority countries in…
- Available Online
- View e-Book
- Other Authors
- Homedes, Nuria
- Ugalde, Antonio
- Responsibility
- Nuria Homedes, Antonio Ugalde, editors
- Place of Publication
- Cham
- Publisher
- Springer
- Date of Publication
- c2014
- Physical Description
- 1 online resource (xvi, 291 p. : 9 illus.)
- Series Vol.
- 2
- Series Title
- Research ethics forum
- ISBN
- 9783319013633
- 9783319013626 (print ed.)
- ISSN
- 2212-9529
- Subjects (MeSH)
- Clinical Trials as Topic - ethics
- Drug Industry - ethics
- Human Experimentation - ethics
- Human Rights Abuses
- Other Subjects
- Latin America
- Abstract
- The outsourcing of clinical trials to Latin America by the transnational innovative pharmaceutical industry began about twenty years ago. Using archival information and field work in Argentina, Brazil, Costa Rica, Mexico and Peru, the authors discuss the regulatory contexts and the ethical dimensions of human experimentation in the region. More than 80% of all clinical trials in the region take place in these countries, and the European Medicines Agency has defined them as priority countries in Latin America. The authors raise questions about the quality of data obtained from the trials and the violation of human rights during their implementation. Their findings are presented in this volume, the first in-depth analysis of clinical trials in the region.
- Contents
- 1. Introduction -- 2. A Review and Critique of International Ethical Principles -- 3. Globalization and Clinical Research in Latin America -- 4. The Regulatory Framework and Case Studies from Argentina -- 5. Politics and Clinical Trials in the Province of Cordoba -- 6. Brazil: The System for the Protection of Voluntary Participants in Research -- 7. Progress and Challenges of Clinical Research with New Medications in Brazil -- 8. A Small Country for Big Pharma: Costa Rica -- 9. Cervical Cancer and the Development of HPV Vaccines in Guanacaste, Costa Rica -- 10. Ethical Guidelines for Clinical Trials in Mexico: Theory and Practice -- 11. Who Decides? Informed Consent for Cancer Patients in Mexico -- 12. A View from Inside: Regulation and Ethical Conflicts in Peru -- 13. Conclusion.
- Format
- e-Book
- Location
- Online
The collaborative partnership approach to care : a delicate balance
https://libcat.nshealth.ca/en/permalink/provcat21988
Laurie N. Gottlieb and Nancy Feeley, with Cindy Dalton.
--Toronto, ON:
Mosby Elsevier
, 2005.
- Call Number
- WY 87 G686c 2005
- Location
- Halifax Infirmary
- Call Number
- WY 87 G686c 2005
- Author
- Gottlieb, Laurie N
- Other Authors
- Feeley, Nancy
- Dalton, Cindy
- Responsibility
- Laurie N. Gottlieb and Nancy Feeley, with Cindy Dalton
- Place of Publication
- Toronto, ON
- Publisher
- Mosby Elsevier
- Date of Publication
- 2005
- Physical Description
- 160 p.
- ISBN
- 0779699564
- Contents
- Part I. Collaborative Partnership -- Chapter 1. Foundations of Collaborative Partnership -- Traditional Hierarchical Relationships vs. Collaborative Partnerships -- Philosophical Stance Underlying the Collaborative Partnership -- Collaborative Partnership: A Definition -- Power Sharing in the Collaborative Partnership -- Focus on Mutually Agreed-On, Person-Centred Goals -- Collaboration as a Dynamic Process -- Cooperation and Patient Participation: Related Concepts -- Principles of the Collaborative Partnership -- Why Collaborative Partnership Is Important Today: The Six Forces -- Force 1. Consumerism and Patient Rights -- Force 2. Primary Health Care and Health Promotion Principles -- Force 3. Access to Health Information -- Force 4. Current Thinking about Nursing and Ethical Nursing Care -- Force 5. Shift from Hospital to Home-Based Care -- Force 6. Knowledge of How People Change -- Is a Collaborative Approach Effective? -- Do People Want to Participate in a Collaborative Partnership with Professionals? -- What Do People Who Have Experienced a Collaborative Partnership Say about This Experience? -- What Do Nurses and Other Professionals Say about Collaboration? -- Chapter 2. Essential Ingredients of a Collaborative Partnership -- Sharing Power -- Knowledge Is Power -- Preconditions for Power Sharing -- Being Open and Respectful -- Being Nonjudgmental and Accepting -- Living with Ambiguity -- Being Self-Aware and Reflective -- Chapter 3. Spiralling Model of Collaborative Partnership -- Phase 1. Exploring and Getting to Know Each Other -- Exchanging Information -- Establishing Trust -- Revealing Concerns -- Phase 2. Zeroing In -- Clarifying Goals -- Prioritizing Goals and Focusing -- Phase 3. Working Out -- Considering Alternatives -- Trying Out a Plan -- Phase 4. Reviewing -- Chapter 4. Factors That Shape the Collaborative Partnership -- Timing: Knowing When the Time Is Right -- Nurse and Person Personal Factors -- Beliefs and Expectations -- Knowledge -- Critical Thinking Skills -- Learning Styles -- Readiness -- Communication and Interpersonal Skills -- Physical and Mental Status -- Relationship Factors -- History of the Relationship -- Goodness of Fit -- Environmental, Organizational, and Other Situational Factors -- How to Use This Knowledge to Promote Collaborative Partnership -- Chapter 5. Nursing Strategies for a Collaborative Partnership -- Strategies for Sharing Power -- Strategies for Conveying Openness and Respect -- Strategies for Being Nonjudgmental and Accepting -- Strategies for Being Flexible or Being Able to Live with Ambiguity -- Strategies for Being Self-Aware and Reflective -- Chapter 6. Indicators of Collaborative Partnership -- Assessment -- Indicators -- Indicators of Power Sharing -- Indicators of Openness, Respect, and a Nonjudgmental Environment -- Indicators That Ambiguity Is Tolerated -- Indicators of Self-Awareness and Reflection -- Indicators of Collaborative Partnership Checklist -- Part II. Ask the Experts -- Chapter 7. Ask the Experts I: Groups, Settings, and Time Frames -- Expert Clinicians -- Collaboration with Different Groups -- Question 1. What Are Some of the Challenges of Collaborating with People from Different Cultural Backgrounds? -- Question 2. Is It Possible to Collaborate with People through an Interpreter? -- Question 3. Do Men and Women Respond Differently to a Collaborative Approach? -- Question 4. If You Are Nursing a Family, How Can You Collaborate with More than One Family Member? -- Question 5. Can You Collaborate with People Who Are Not Very Articulate or Have Difficulty Expressing Their Needs or Goals? -- Question 6. How Do You Collaborate with People Who Are Unable to Communicate Because They Are Acutely or Terminally Ill? -- Collaboration across Settings and across Time -- Question 7. How Does the Setting Affect the Collaborative Partnership? -- Question 8. Can a Collaborative Approach to Nursing Be Used Where Nursing Encounters Are Brief, Such As in the Emergency Department or in a Student Health Centre? -- Question 9. What Are the Advantages of Collaborating with People over an Extended Period of Time? -- Chapter 8. Ask the Experts II: Collaboration and the Nurse-Person Relationship -- Question 1. Some People Believe Professionals Are the "Experts" Who Know What Is Best. Can a Nurse Use a Collaborative Partnership Approach with People Who Hold This Belief? -- Question 2. Some People Believe That the Professional Has to Experience a Situation Personally to Be Credible. How Can a Nurse Work Collaboratively with People Who Feel This Way? -- Question 3. In a Collaborative Partnership, How Much Should the Nurse Disclose about Herself? -- Question 4. Are There Situations in Which the Nurse Is More Directive and Assumes More of the Lead or in Which Collaboration Is Not Appropriate? -- Question 5. Nursing in a Community Setting or an Ambulatory Care Setting Often Involves Telephone Contact with People. Is It Possible to Use a Collaborative Partnership Approach during Telephone Contact or Is Face-to-Face Contact with People Necessary? -- Question 6. What Does the Process or Ending or Terminating a Relationship Look Like in a Collaborative Partnership? Is It Different than in a Noncollaborative Approach? -- Question 7. What Are the Limitations or Disadvantages of Using a Collaborative Partnership Approach in Your Practice? -- Question 8. If You Had Two Minutes to Convince Colleagues to Adopt a Collaborative Partnership Approach in Their Practice, What Would You Tell Them?
- Format
- Book
- Location
- Halifax Infirmary
- Loan Period
- 3 weeks
Concepts and Practice of Humanitarian Medicine
https://libcat.nshealth.ca/en/permalink/provcat28757
edited by S. William A. Gunn, Michele Masellis.
--New York, NY:
Springer Science+Business Media
, c2008.
- Available Online
- View e-Book
- Location
- Online
- Available Online
- View e-Book
- Author
- Gunn, S. William A
- Other Authors
- Masellis, Michele
- Responsibility
- edited by S. William A. Gunn, Michele Masellis
- Place of Publication
- New York, NY
- Publisher
- Springer Science+Business Media
- Date of Publication
- c2008
- ISBN
- 9780387722641
- Subjects (MeSH)
- Health Services Accessibility
- Human Rights
- International Cooperation
- Public Health
- Global Health
- Subjects (LCSH)
- Public health
- Format
- e-Book
- Location
- Online
