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Autistic Community and the Neurodiversity Movement : Stories from the Frontline

https://libcat.nshealth.ca/en/permalink/provcat44710
Steven K. Kapp, editor. --Singapore: Palgrave Macmillan , c2020.
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This open access book marks the first historical overview of the autism rights branch of the neurodiversity movement, describing the activities and rationales of key leaders in their own words since it organized into a unique community in 1992. Sandwiched by editorial chapters that include critical analysis, the book contains 19 chapters by 21 authors about the forming of the autistic community and neurodiversity movement, progress in their influence on the broader autism community and field, a…
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Other Authors
Kapp, Steven K.
Responsibility
Steven K. Kapp, editor
Place of Publication
Singapore
Publisher
Palgrave Macmillan
Date of Publication
c2020
Physical Description
1 online resource (xix, 330 p.) : 7 illus., 6 illus. in color
ISBN
9789811384370
9789811384363 (Print ed.)
9789811384387 (Print ed.)
9789811384394 (Print ed.)
Subjects (MeSH)
Autism Spectrum Disorder
Cultural Diversity
Human Rights
Mental Health - ethics
Minority Health
Psychology, Social - ethics
Subjects (LCSH)
People with disabilities
Child psychiatry
Social work
Medical ethics
Specialty
Disability Studies
Minority Health
Psychiatry
Social Medicine
Abstract
This open access book marks the first historical overview of the autism rights branch of the neurodiversity movement, describing the activities and rationales of key leaders in their own words since it organized into a unique community in 1992. Sandwiched by editorial chapters that include critical analysis, the book contains 19 chapters by 21 authors about the forming of the autistic community and neurodiversity movement, progress in their influence on the broader autism community and field, and their possible threshold of the advocacy establishment. The actions covered are legendary in the autistic community, including manifestos such as “Don’t Mourn for Us”, mailing lists, websites or webpages, conferences, issue campaigns, academic project and journal, a book, and advisory roles. These actions have shifted the landscape toward viewing autism in social terms of human rights and identity to accept, rather than as a medical collection of deficits and symptoms to cure.
Contents
1. Introduction -- Part I: Gaining Community -- 2. Historicizing Jim Sinclair’s “Don’t Mourn for Us”: A Cultural and Intellectual History of Neurodiversity’s Origins -- 3. From Exclusion to Acceptance: Independent Living on the Autistic Spectrum -- 4. Autistic People Against Neuroleptic Abuse -- 5. Autistics.org and Finding our Voices as an Activist Movement -- 6. Losing -- Part II: Getting Heard -- 7. Neurodiversity.com: A Decade of Advocacy -- 8. Autscape -- 9. The Autistic Genocide Clock -- 10. Shifting the System: AASPIRE and the Loom of Science and Activism -- 11. Out of Searching Comes New Vibrance -- 12. Two Winding Parent Paths to Neurodiversity Advocacy -- 13. Lobbying Autism’s Diagnostic Revision in the DSM-5 -- 14. Torture in the Name of Treatment: The Mission to Stop the Shocks in the Age of Deinstitutionalization -- 15. Autonomy, the Critical Journal of Interdisciplinary Autism Studies -- 16. My Time with Autism Speaks -- 17. Covering the Politics of Neurodiversity: And Myself -- 18. “A Dream Deferred” No Longer: Backstory of the First Autism and Race Anthology -- Part III: Entering the Establishment? -- 19. Changing Paradigms: The Emergence of the Autism/Neurodiversity Manifesto -- 20. From Protest to Taskforce -- 21. Critiques of the Neurodiversity Movement -- 22. Conclusion.
Access
Open access
Format
e-Book
Location
Online
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A child's right to a healthy environment

https://libcat.nshealth.ca/en/permalink/provcat40973
James Garbarino, Garry Sigman, editors. --New York: Springer , c2010.
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Online
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Garbarino, James
Sigman, Garry
Other Authors
Loyola University Chicago Center for the Human Rights of Children
Other Authors
Loyola University Symposium on the Human Rights of Children (2008 : Chicago Ill)
Responsibility
James Garbarino, Garry Sigman, editors
Place of Publication
New York
Publisher
Springer
Date of Publication
c2010
Physical Description
1 online resource (xii, 254 p. : ill.)
Series Vol.
v. 1
Series Title
Loyola University symposium on the human rights of children
ISBN
9781441967916
9781441967893 (print ed.)
Subjects (MeSH)
Child Welfare
Human Rights
Social Environment
Contents
Part I. Perspectives on Healthy Environments for Children -- 1. “To Such as These, the Kingdom of Heaven Belongs”: Religious Faith as a Foundation for Children’s Rights -- 2. Preventing Childhood Malaria: Strategies That Work Today and Directions for the Future -- 3. A Case Study of a Partnership in Chicago to Prevent Childhood Lead Poisoning -- Part II. Why Is Protecting the Human Rights of Children so Difficult? -- 4. Spare the Rod: Why Are More American Children Victims and Perpetrators of Violence Than Those of Any Other Developed Country? -- 5. Promoting a Protective Environment for Children Affected by Disaster and War -- 6. When Rights and Needs Collide -- Part III. Human Rights as a Tool for Social Change -- 7. The UN Convention on the Rights of the Child: An Instrument for Creating a Healthy Environment for the Child -- 8. The Right to a Family Environment for Children of Prisoners -- 9. A Child’s Right to an Environment that Prevents Obesity: Ethical Considerations -- 10. Anchoring and Empowering Children: A Child’s Right to Participation Within a Healthy Environment -- Part IV. Cultural and Social Impediments to a Healthy Environment for Children -- 11. Child Slavery and the Global Economy: Historical Perspectives on a Contemporary Problem -- 12. In Harm’s Way in America: The Burden of Gun Violence -- 13. The Right to a Healthy Social Environment: Protecting Children from Social Toxicity.
Format
e-Book
Publication Type
Congress
Location
Online
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Clinical Trials in Latin America : Where Ethics and Business Clash

https://libcat.nshealth.ca/en/permalink/provcat39618
Nuria Homedes, Antonio Ugalde, editors. --Cham: Springer , c2014.
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The outsourcing of clinical trials to Latin America by the transnational innovative pharmaceutical industry began about twenty years ago. Using archival information and field work in Argentina, Brazil, Costa Rica, Mexico and Peru, the authors discuss the regulatory contexts and the ethical dimensions of human experimentation in the region. More than 80% of all clinical trials in the region take place in these countries, and the European Medicines Agency has defined them as priority countries in…
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Other Authors
Homedes, Nuria
Ugalde, Antonio
Responsibility
Nuria Homedes, Antonio Ugalde, editors
Place of Publication
Cham
Publisher
Springer
Date of Publication
c2014
Physical Description
1 online resource (xvi, 291 p. : 9 illus.)
Series Vol.
2
Series Title
Research ethics forum
ISBN
9783319013633
9783319013626 (print ed.)
ISSN
2212-9529
Subjects (MeSH)
Clinical Trials as Topic - ethics
Drug Industry - ethics
Human Experimentation - ethics
Human Rights Abuses
Other Subjects
Latin America
Abstract
The outsourcing of clinical trials to Latin America by the transnational innovative pharmaceutical industry began about twenty years ago. Using archival information and field work in Argentina, Brazil, Costa Rica, Mexico and Peru, the authors discuss the regulatory contexts and the ethical dimensions of human experimentation in the region. More than 80% of all clinical trials in the region take place in these countries, and the European Medicines Agency has defined them as priority countries in Latin America. The authors raise questions about the quality of data obtained from the trials and the violation of human rights during their implementation. Their findings are presented in this volume, the first in-depth analysis of clinical trials in the region.
Contents
1. Introduction -- 2. A Review and Critique of International Ethical Principles -- 3. Globalization and Clinical Research in Latin America -- 4. The Regulatory Framework and Case Studies from Argentina -- 5. Politics and Clinical Trials in the Province of Cordoba -- 6. Brazil: The System for the Protection of Voluntary Participants in Research -- 7. Progress and Challenges of Clinical Research with New Medications in Brazil -- 8. A Small Country for Big Pharma: Costa Rica -- 9. Cervical Cancer and the Development of HPV Vaccines in Guanacaste, Costa Rica -- 10. Ethical Guidelines for Clinical Trials in Mexico: Theory and Practice -- 11. Who Decides? Informed Consent for Cancer Patients in Mexico -- 12. A View from Inside: Regulation and Ethical Conflicts in Peru -- 13. Conclusion.
Format
e-Book
Location
Online
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Concepts and Practice of Humanitarian Medicine

https://libcat.nshealth.ca/en/permalink/provcat28757
edited by S. William A. Gunn, Michele Masellis. --New York, NY: Springer Science+Business Media , c2008.
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Location
Online
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Author
Gunn, S. William A
Other Authors
Masellis, Michele
Responsibility
edited by S. William A. Gunn, Michele Masellis
Place of Publication
New York, NY
Publisher
Springer Science+Business Media
Date of Publication
c2008
ISBN
9780387722641
Subjects (MeSH)
Health Services Accessibility
Human Rights
International Cooperation
Public Health
Global Health
Subjects (LCSH)
Public health
Format
e-Book
Location
Online
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Human rights in Islam and the refutation of the misconceived allegations associated with these rights

https://libcat.nshealth.ca/en/permalink/provcat53613
Al Hageel, Sulieman Adbul Rahman. Imam Muhammad Bin Saud Islamic University , 1999.
Call Number
BP 170 H141 1999
Location
IWK Health Sciences Library
Call Number
BP 170 H141 1999
Author
Al Hageel, Sulieman Adbul Rahman
Publisher
Imam Muhammad Bin Saud Islamic University
Date of Publication
1999
Physical Description
179 p.
ISBN
9960914194
Subjects (MeSH)
Religion
Islam
Human Rights
Format
Book
Location
IWK Health Sciences Library
Copies
1
Loan Period
2 weeks
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Human subjects research after the Holocaust

https://libcat.nshealth.ca/en/permalink/provcat33862
Sheldon Rubenfeld, Susan Benedict, editors ; foreword by Arthur L. Caplan. --Cham, Switzerland: Springer , c2014.
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'An engaging, compelling and disturbing confrontation with evil...abook that will be transformative in its call for individual and collective moral responsibility." - Michael A. Grodin, M.D., Professor and Director, Project on Medicine and the Holocaust, Elie Wiesel Center for Judaic Studies, Boston University. Human Subjects Research after the Holocaust challenges you to confront the misguided medical ethics of the Third Reich personally, and to apply the lessons learned to contemporary human …
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Other Authors
Rubenfeld, Sheldon
Benedict, Susan
Responsibility
Sheldon Rubenfeld, Susan Benedict, editors ; foreword by Arthur L. Caplan
Place of Publication
Cham, Switzerland
Publisher
Springer
Date of Publication
c2014
Physical Description
1 online resource (xvi, 308 pages)
ISBN
9783319057026 (electronic bk.)
9783319057019
Subjects (MeSH)
Bioethics
Ethics, Medical
Ethical Review
Human Experimentation - ethics
National Socialism - history
Nontherapeutic Human Experimentation - history
Research Subjects
Subjects (LCSH)
Human experimentation in medicine - Moral and ethical aspects
Human experimentation in medicine - Germany - History - 20th century
Theory of Medicine/Bioethics
History of Science
History of Medicine
Human Rights
Abstract
'An engaging, compelling and disturbing confrontation with evil...abook that will be transformative in its call for individual and collective moral responsibility." - Michael A. Grodin, M.D., Professor and Director, Project on Medicine and the Holocaust, Elie Wiesel Center for Judaic Studies, Boston University. Human Subjects Research after the Holocaust challenges you to confront the misguided medical ethics of the Third Reich personally, and to apply the lessons learned to contemporary human subjects research. While it is comforting to believe that Nazi physicians, nurses, and bioscientists were either incompetent, mad, or few in number, they were, in fact, the best in the world at the time, and the vast majority participated in the government program of 'applied biology.' They were not coerced to behave as they did-they enthusiastically exploited widely accepted eugenic theories to design horrendous medical experiments, gas chambers and euthanasia programs, which ultimately led to mass murder in the concentration camps. Americans provided financial support for their research, modeled their medical education and research after the Germans, and continued to perform unethical human subjects research even after the Nuremberg Doctors' Trial. The German Medical Association apologized in 2012 for the behavior of its physicians during the Third Reich. By examining the medical crimes of human subjects researchers during the Third Reich, you will naturally examine your own behavior and that of your colleagues, and perhaps ask yourself "If the best physicians and bioscientists of the early 20th century could do evil while believing they were doing good, can I be certain that I will never do the same?" Presents relatively unknown aspects of human subjects research during the Third Reich Reveals surprising relationships between German and American human subjects research Dispels myths about Nazi human subjects research Compels introspection and self-examination by today's medical and research practitioners Addresses contemporary bioethical issues affecting vulnerable populations Brings together experts in the history of medicine during the Third Reich and thoughtful new voices.
Contents
Introduction: How Did It Go So Wrong? -- Twin Experiments at Auschwitz: A First-Person Account -- Eugenics and Racial Hygiene: Applied Research Strategies before, during, and after National Socialism -- Medical Ethics and Medical Research on Human Beings in National Socialism -- Sulfonamide Experiments on Prisoners in Nazi Concentration Camps: Coherent Scientific Rationality Combined with Complete Disregard of Humanity -- Stages of Transgression: Anatomical Research in National Socialism -- Nurses and Human Subjects Research during the Third Reich and Now -- Involuntary Abortion and Coercive Research on Pregnant Forced Laborers in National Socialism -- Abusive Medical Practices on "Euthanasia" Victims in Austria during and after World War II -- Medical Research and National Socialist Euthanasia: Carl Schneider and the Heidelberg Research Children from 1942 until 1945 -- Victims of Human Experiments and Coercive Research under National Socialism: Gender and Racial Aspects -- The White Rose: Resisting National Socialism, with an Introduction by Susan Benedict -- The Origins and Impact of the Nuremberg Doctors' Trial -- In the Shadow of Nuremberg: Unlearned Lessons from the Medical Trial -- The Ethics of Medical Experiments: Have We Learned the Lessons of Tuskegee and the Holocaust? -- Human Subjects Research during and after the Holocaust: Typhus Vaccine Development and the Legacy of Gerhard Rose -- Ethics in Space Medicine: Holocaust Beginnings, the Present, and the Future -- Reproduction Then and Now: Learning from the Past -- Promoting Clinical Research and Avoiding Bad Medicine: A Clinical Research Curriculum -- The Psychophysiology of Attribution: Why Appreciative Respect Can Keep Us Safe -- Confronting Medicine during the Nazi Period: Autobiographical Reflections -- Teaching the Holocaust to Medical Students: A Reflection on Pedagogy and Medical Ethics -- No Exceptions, No Excuses: A Testimonial.
Format
e-Book
Location
Online
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India’s Mental Healthcare Act, 2017 : Building Laws, Protecting Rights

https://libcat.nshealth.ca/en/permalink/provcat45520
Richard M. Duffy, Brendan D. Kelly. --Singapore: Springer , c2020.
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Online
This book comprehensively discusses the background to the passing of India's revolutionary Mental Healthcare Act, 2017, offering a detailed description of the Act itself and a rigorous analysis in the context of the CRPD and the World Health Organization (WHO) standards for mental health law. It examines the fine balance, between complying with the CRPD while still delivering practical, humane, and implementable legislation. It explores how this legislation was shaped by the WHO standards and p…
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Author
Duffy, Richard M.
Other Authors
Kelly, Brendan D.
Responsibility
Richard M. Duffy, Brendan D. Kelly
Place of Publication
Singapore
Publisher
Springer
Date of Publication
c2020
Physical Description
1 online resource (xxxvii, 272 p.) : 1 illus.)
ISBN
9789811550096
9789811550089 (Print ed.)
9789811550102 (Print ed.)
9789811550119 (Print ed.)
Subjects (MeSH)
Disabled Persons - legislation & jurisprudence
Human Rights - standards
Mental Health Services - legislation & jurisprudence
United Nations
Other Subjects
India
Specialty
Mental Health Services
Policy
Abstract
This book comprehensively discusses the background to the passing of India's revolutionary Mental Healthcare Act, 2017, offering a detailed description of the Act itself and a rigorous analysis in the context of the CRPD and the World Health Organization (WHO) standards for mental health law. It examines the fine balance, between complying with the CRPD while still delivering practical, humane, and implementable legislation. It explores how this legislation was shaped by the WHO standards and provides insights into areas where the Indian legislators deviated from these guidelines and why. Taking India as an example, it highlights what is possible in other low- and middle-income countries. Further it covers key issues in mental health, identifying potential competing interests and exploring the difficulties and limitations of international guidelines. The book is a valuable resource for psychiatrists, nurses, social workers, non-governmental organizations and all mental healthcare workers in India and anyone studying human rights law.
Contents
Part I. Mental Health Law and the Role of International Standards -- 1. Background to Mental Health Law -- 2. The United Nations and Mental Health Law -- 3. The World Health Organization and Mental Health Law -- Part II. Mental Health Legislation in India -- 4. History of Mental Health Legislation in India -- 5. India’s Rights of Persons with Disabilities Act, 2016 -- 6. India’s Mental Healthcare Act, 2017 -- Part III. India’s Mental Healthcare Act, 2017 and International Human Rights Standards -- 7. India’s Mental Healthcare Act, 2017 and the World Health Organization’s Checklist on Mental Health Legislation -- 8. Incorporation of the United Nations’ Convention on the Rights of Persons with Disabilities into Indian Law Through the Rights of Persons with Disabilities Act, 2016 and the Mental Healthcare Act, 2017 -- 9. Compliance of India’s Mental Healthcare Act, 2017 with the United Nations’ Convention on the Rights of Persons with Disabilities -- 10. Adhering to Conventions: Intentional Grey Areas or Shirking Responsibility? -- Part IV. Where Now? Contribution by Dr Soumitra Pathare and Arjun Kapoor -- 11. Implementation Update on Mental Healthcare Act, 2017.
Format
e-Book
Location
Online
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Race against time

https://libcat.nshealth.ca/en/permalink/provcat22748
Lewis, Stephen. --Toronto, ON: House of Anansi Press , 2005.
Call Number
JC 571 L676r 2005
Location
Halifax Infirmary
Call Number
JC 571 L676r 2005
Author
Lewis, Stephen
Place of Publication
Toronto, ON
Publisher
House of Anansi Press
Date of Publication
2005
Physical Description
198 p.
Series Title
CBC Massey lectures series
ISBN
0887847331
Subjects (MeSH)
Developing Countries
International Cooperation
Health Services Accessibility
Human Rights
Public Policy
Format
Book
Location
Halifax Infirmary
Loan Period
3 weeks
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Sex Work, Health, and Human Rights : Global Inequities, Challenges, and Opportunities for Action

https://libcat.nshealth.ca/en/permalink/provcat46280
Shira M. Goldenberg, Ruth Morgan Thomas, Anna Forbes, Stefan Baral, editors. --Cham: Springer , c2021.
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Open access
Location
Online
Available Online
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Other Authors
Goldenberg, Shira M.
Responsibility
Shira M. Goldenberg, Ruth Morgan Thomas, Anna Forbes, Stefan Baral, editors
Place of Publication
Cham
Publisher
Springer
Date of Publication
c2021
Physical Description
1 online resource (xxiii, 263 pages)
ISBN
9783030641719
Subjects (MeSH)
Global Health
Health Services Accessibility
Human Rights
Sex Work
Specialty
Sexual Health
Social Medicine
Contents
Burden of Health and Human Rights Inequities Faced by Sex Workers Globally -- Structural Determinants of Health and Human Rights Inequities in Sex Work -- Evidence-Based Services and Best Practices: Opportunities for Action.
Access
Open access
Format
e-Book
Location
Online
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9 records – page 1 of 1.