AIDS Activism, Science and Community Across Three Continents
https://libcat.nshealth.ca/en/permalink/provcat41412
Robert Lorway.
--Cham:
Springer
, 2017.
- Available Online
- View e-Book
- Location
- Online
This book critically examines the many complex entanglements between AIDS activism and HIV science. It takes readers on a medical anthropological expedition across time and space that highlights the stakes from the perspective of those most affected by the epidemic. Author Robert Lorway reveals how early in the HIV epidemic, amid inadequate government leadership, communities of people living with and directly affected by HIV and AIDS rose to become a vital force at the forefront of prevention r…
- Available Online
- View e-Book
- Author
- Lorway, Robert
- Responsibility
- Robert Lorway
- Place of Publication
- Cham
- Publisher
- Springer
- Date of Publication
- 2017
- Physical Description
- 1 online resource (xxiv, 153 pages) : 14 illus.
- Series Title
- Social aspects of HIV
- ISBN
- 9783319421995
- 9783319421971 (print ed.)
- ISSN
- 2509-6559
- Subjects (MeSH)
- Acquired Immunodeficiency Syndrome - psychology
- Community Health Services
- HIV infections - psychology
- Patient Advocacy
- Sociological Factors
- Abstract
- This book critically examines the many complex entanglements between AIDS activism and HIV science. It takes readers on a medical anthropological expedition across time and space that highlights the stakes from the perspective of those most affected by the epidemic. Author Robert Lorway reveals how early in the HIV epidemic, amid inadequate government leadership, communities of people living with and directly affected by HIV and AIDS rose to become a vital force at the forefront of prevention responses. Yet now, more than three decades later, HIV prevention and treatment is increasingly being placed under the jurisdiction of clinical, epidemiological, and management scientific expertise. In this kind of context, where does activism figure into the possibility of more democratized collaborations between affected communities, scientists, and policy makers? Coverage draws upon the findings from an array of community research projects conducted in Canada, India, and Kenya over a 22-year period. It weaves together rich, original data sources that range from in-depth qualitative interviews, field notes, and primary and secondary archival document retrievals in these three regions. Offering a rich diversity in perspectives, this book tackles the broader themes related to global health policy, science, and transnational activism at the same time as it highlights the experiences and local arenas where debates about activism and science play out. In the end, Lorway questions the growing expectation for affected communities themselves to produce sound evidence to legitimize their advocacy projects. He calls for the planners and implementers of biomedically oriented HIV research and interventions to more meaningfully engage with communities in ways that de-monopolize decision making as a matter of ethics and improved scientific practice.
- Contents
- Introduction -- Section I. Canada: Professionalization -- 1. A Vital Response -- 2. Treatment Rebellions -- Section II. India: Techno-Bureaucratization -- 3. Geographies of Intervention -- 4. Documenting Sovereignty -- III. Kenya: Bioexperimentalization -- 5. A South-to-South Collaboration -- 6. The Logic of Verification -- Conclusion.
- Format
- e-Book
- Location
- Online
Canadian patient's book of rights, The : a consumer's guide to Canadian health
https://libcat.nshealth.ca/en/permalink/provcat52960
[by] Lorne E. Rozovsky.
(rev. and updated)
--Toronto, ON:
Doubleday Canada
, 1994.
- Call Number
- W 32.5 DC2 R893 1994
- Location
- IWK Health Sciences Library
- Call Number
- W 32.5 DC2 R893 1994
- Author
- Rozovsky, Lorne E.
- Responsibility
- [by] Lorne E. Rozovsky
- Edition
- rev. and updated
- Place of Publication
- Toronto, ON
- Publisher
- Doubleday Canada
- Date of Publication
- 1994
- Physical Description
- 242 p.
- ISBN
- 385254490
- Subjects (MeSH)
- Patient Advocacy - legislation & jurisprudence
- Legislation, Medical
- Ethics, Medical
- Consumer Satisfaction
- Patient Satisfaction
- Canada
- Notes
- Consumer health information.
- "Endorsed by the Canadian Pharmaceutical Association".
- Format
- Book
- Location
- IWK Health Sciences Library
- Copies
- 1
- Loan Period
- 2 weeks
Children's rights in the practice of family law
https://libcat.nshealth.ca/en/permalink/provcat53026
edited by Barbara landau.
--Toronto, ON:
Carswell
, 1986.
- Call Number
- WA 320 DC2 L16 1986
- Location
- IWK Health Sciences Library
- Call Number
- WA 320 DC2 L16 1986
- Author
- Landau, Barbara
- Responsibility
- edited by Barbara landau
- Place of Publication
- Toronto, ON
- Publisher
- Carswell
- Date of Publication
- 1986
- Physical Description
- 378 p.
- ISBN
- 459390406
- Subjects (MeSH)
- Patient Advocacy - legislation & jurisprudence
- Child Welfare - legislation & jurisprudence
- Canada
- Format
- Book
- Location
- IWK Health Sciences Library
- Copies
- 1
- Loan Period
- 2 weeks
Human Trafficking Is a Public Health Issue : A Paradigm Expansion in the United States
https://libcat.nshealth.ca/en/permalink/provcat41588
Makini Chisolm-Straker, Hanni Stoklosa, editors.
--Cham:
Springer
, 2017.
- Available Online
- View e-Book
- Location
- Online
This clear-sighted reference examines the public health dimensions of labor and sex trafficking in the United States, the scope of the crisis, and possibilities for solutions. Its ecological lifespan approach globally traces risk and protective factors associated with this exploitation, laying a roadmap towards its prevention. Diverse experts, including survivors, describe support and care interventions across domains and disciplines, from the law enforcement and judicial sectors to community h…
- Available Online
- View e-Book
- Other Authors
- Chisolm-Straker, Makini
- Stoklosa, Hanni
- Responsibility
- Makini Chisolm-Straker, Hanni Stoklosa, editors
- Place of Publication
- Cham
- Publisher
- Springer
- Date of Publication
- 2017
- Physical Description
- 1 online resource (xxxvii, 457 pages) : 15 illus., 13 illus. in color
- ISBN
- 9783319478241
- 9783319478234 (print ed.)
- Subjects (MeSH)
- Crime Victims
- Health Policy
- Human Trafficking - prevention & control
- Patient Advocacy
- Sex Offenses
- Other Subjects
- United States
- Abstract
- This clear-sighted reference examines the public health dimensions of labor and sex trafficking in the United States, the scope of the crisis, and possibilities for solutions. Its ecological lifespan approach globally traces risk and protective factors associated with this exploitation, laying a roadmap towards its prevention. Diverse experts, including survivors, describe support and care interventions across domains and disciplines, from the law enforcement and judicial sectors to community health systems and NGOs, with a robust model for collaboration. By focusing on the humanity of trafficked persons, a public health paradigm broadens our understanding of and ability to address trafficking while adding critical direction and resources to the criminal justice and human rights structures currently in place. Human Trafficking Is a Public Health Issue is a sobering read; a powerful call to action for public health professionals, including social workers and health care practitioners providing direct services, as well as the larger anti-trafficking community of advocates, prosecutors, taskforce members, law enforcement agents, officers, funders, and administrators. "An extraordinary collection of knowledge by survivors, academics, clinicians, and advocates who are experts on human trafficking. Human Trafficking is a Public Health Issue is a comprehensive offering in educating readers on human trafficking through a multi-pronged public health lens." Margeaux Gray: Survivor, Advocate, Artist, Public Speaker.
- Contents
- 1. Introduction to Human Trafficking: Who Is Affected? -- 2. Sex Trafficked and Missed -- 3. The Lost Boy: How a Forgotten Child Became a Victim of Labor Trafficking -- 4. Sex Trafficking in the USA -- 5. The Ignored Exploitation: Labor Trafficking in the United States -- 6. Trafficking of Children Within the United States -- 7. Children at Risk: Foster Care and Human Trafficking -- 8. Sex Trafficking in Indian Country -- 9. LGBTQ Youth and Vulnerability to Sex Trafficking -- 10. The Multimodal Social Ecological (MSE) Approach: A Trauma-Informed Framework for Supporting Trafficking Survivors’ Psychosocial Health -- 11. Physical Health of Human Trafficking Survivors: Unmet Essentials -- 12. Trauma-Informed Treatment of Substance Use Disorders in Trafficking Survivors -- 13. The Development and Psychology of Young Minds: Communities Can Prevent Exploitation and Facilitate Rehabilitation -- 14. Legal Supports for Trafficked Persons: Assisting Survivors via Certification, State/Federal Benefits, and Compensation -- 15. NGOs and the Anti-Trafficking Movement: Advocacy and Service -- 16. The Role of Faith-Based Organizations in the US Anti-Trafficking Movement -- 17. Research Informing Advocacy: An Anti-Human Trafficking Tool -- 18. Caring for Survivors Using a Trauma-Informed Care Framework -- 19. Sex Trafficking in One US City: Traditional Policing and Boston’s Shift to a Survivor-Centered Response -- 20. The Role of Community Health Centers in Addressing Human Trafficking -- 21. The Media and Human Trafficking: A Discussion and Critique of the Dominant Narrative -- 22. Human Trafficking: Perspectives on Prevention -- 23. Combating Modern Bondage: The Development of a Multi-Disciplinary Approach to Human Trafficking -- 24. Moving Forward: Next Steps in Preventing and Disrupting Human Trafficking.
- Format
- e-Book
- Location
- Online
Living donor advocacy : an evolving role within transplantation
https://libcat.nshealth.ca/en/permalink/provcat33408
Jennifer Steel, editor.
--New York:
Springer
, c2014.
- Available Online
- View e-Book
- Location
- Online
The inadequate supply of organs in the United States and other countries continues to drive the reliance on living donor transplantation. Representatives of the transplant community convened for a meeting on living donation in an effort to provide guidelines to promote the welfare of living donors. The consensus statement that resulted from this meeting recommended that transplant centers retain an Independent Living Donor Advocate (ILDA) to focus on the best interest of the donor. Over a decad…
- Available Online
- View e-Book
- Other Authors
- Steel, Jennifer
- Responsibility
- Jennifer Steel, editor
- Place of Publication
- New York
- Publisher
- Springer
- Date of Publication
- c2014
- Physical Description
- 1 online resource (xv, 362 pages)
- ISBN
- 9781461491439 (electronic bk.)
- 9781461491422
- Subjects (MeSH)
- Living Donors - ethics
- Patient Advocacy - ethics
- Patient Advocacy - standards
- Transplantation - ethics
- Transplantation - standards
- Subjects (LCSH)
- Living related donor transplantation
- Transplantation of organs, tissues, etc. - Moral and ethical aspects
- Transplant Surgery
- Abstract
- The inadequate supply of organs in the United States and other countries continues to drive the reliance on living donor transplantation. Representatives of the transplant community convened for a meeting on living donation in an effort to provide guidelines to promote the welfare of living donors. The consensus statement that resulted from this meeting recommended that transplant centers retain an Independent Living Donor Advocate (ILDA) to focus on the best interest of the donor. Over a decade later, nearly every transplant center in the United States, performing living donor surgeries, has incorporated an ILDA into their living donor screening and/or evaluation process, however there are no guidelines with regard to the ILDA's qualifications, clinical practice, or how address ethical challenges.
- Contents
- Part I: Living Donation -- 1. The Medical Selection of Live Donors -- 2. Kidney Paired Donation Programs for Incompatible Living Kidney Donors and Recipients -- 3. Living Donor Liver Transplantation -- 4. Intestinal Transplantation from Living Donors -- 5. Living Donor Lung Transplantation -- 6. Live Donor Pancreas Transplantation -- Part II: Living Donor Advocacy -- 7: The History of Living Donor Advocacy in Living Donor Transplantation -- 8. Findings from a National Survey of Living Donor Advocates -- 9. The Independent Donor Advocate and the Independent Donor Advocate Team -- 10. Classification of Living Organ Donors -- 11. Unrelated Donors -- 12. Education of the Donor by the ILDA (Psychosocial Aspects) -- 13. Components and Timing of the ILDA Evaluation -- 14. Contraindications to Living Donation from an ILDA Perspective -- 15. Management of Conflict Between the Independent Living Donor Advocate and the Transplant Team -- 16. Story Behind the Story -- 17. Living Donor Experience -- Part III: Living Donor Ethics -- 18. Informed Consent for Living Organ Donation -- 19. Pressure and Coercion -- 20. Financial Considerations -- 21. Autonomy, Agency, and Responsibility: Ethical Concerns for Living Donor Advocates -- 22. A Practical Guide: Role of the Independent Living Donor Advocate: Protect or Advocate or Is It Both/And? -- 23. Racial Disparities in Kidney Transplant and Living Donation -- 24. The Evolution of the Role of the Independent Living Donor Advocates: Recommendations for Practice Guidelines.
- Format
- e-Book
- Location
- Online
Patients' rights : ethical and legal issues in health care and nursing
https://libcat.nshealth.ca/en/permalink/provcat54107
[by] Janet Storch.
--Toronto, ON:
McGraw-Hill
, 1982.
- Call Number
- W 50 DC2 S76 1982
- Location
- IWK Health Sciences Library
- Call Number
- W 50 DC2 S76 1982
- Author
- Storch, Janet
- Responsibility
- [by] Janet Storch
- Place of Publication
- Toronto, ON
- Publisher
- McGraw-Hill
- Date of Publication
- 1982
- Physical Description
- 249 p.
- ISBN
- 75484773
- Subjects (MeSH)
- Patient Advocacy
- Nurse-Patient Relations
- Physician-Patient Relations
- Ethics, Medical
- Legislation
- Canada
- Format
- Book
- Location
- IWK Health Sciences Library
- Copies
- 1
- Loan Period
- 2 weeks
Speaking for patients and carers : health consumer groups and the policy process
https://libcat.nshealth.ca/en/permalink/provcat41080
Rob Baggott, Judith Allsop, and Kathryn Jones.
--Houndmills [England]:
Palgrave Macmillan
, c2005.
- Available Online
- View e-Book
- Location
- Online
Speaking for Patients and Carers draws on original research and is based on a theoretical framework taken from sociology and politics. It examines health consumer groups in the context of specific conditions: arthritis and related conditions, cancer, heart and circulatory disease, maternity and childbirth, and mental health. It also analyzes their interaction with government, health professionals and the media, and assesses their impact on policy.
- Available Online
- View e-Book
- Author
- Baggott, Rob
- Other Authors
- Allsop, Judy, 1938-
- Jones, Kathryn
- Responsibility
- Rob Baggott, Judith Allsop, and Kathryn Jones
- Place of Publication
- Houndmills [England]
- Publisher
- Palgrave Macmillan
- Date of Publication
- c2005
- Physical Description
- 1 online resource (xvi, 349 p.)
- ISBN
- 9780230801851
- 9780333968284 (hbk.)
- 9780333968291 (pbk.)
- Subjects (MeSH)
- Consumer Organizations
- Health Policy
- Patient Advocacy
- Other Subjects
- United Kingdom
- Abstract
- Speaking for Patients and Carers draws on original research and is based on a theoretical framework taken from sociology and politics. It examines health consumer groups in the context of specific conditions: arthritis and related conditions, cancer, heart and circulatory disease, maternity and childbirth, and mental health. It also analyzes their interaction with government, health professionals and the media, and assesses their impact on policy.
- Contents
- 1. Health care politics and the policy process: concepts, theories and models -- 2. The policy context -- 3. The condition areas -- 4. Health consumer groups: formation and characteristics -- 5. Health consumer groups: social and political resources -- 6. Networks, and informal and formal alliances -- 7. Collaboration with health professionals -- 8. The pharmaceutical industry -- 9. Working with government -- 10. Working with parliament -- 11. Working with the media -- 12. Conclusion: speaking for patients and carers?
- Format
- e-Book
- Location
- Online
Supportive Cancer Care
https://libcat.nshealth.ca/en/permalink/provcat39966
David Alberts, Maria Lluria-Prevatt, Stephanie Kha, Karen Weihs, editors.
--Cham:
Springer
, c2016.
- Available Online
- View e-Book
- Location
- Online
This textbook provides a highly coordinated, interdisciplinary model for future clinical cancer supportive care programs in National Cancer Institute (NCI)-designated Clinical and Comprehensive Cancer Centers and NCI Community Oncology Research Programs (NCORPs). At the same time, it is intended to serve as an up-to-date resource for oncologists and primary care providers that addresses the many aspects of supportive care associated with cancer survivorship. Accordingly, the book covers a wide …
- Available Online
- View e-Book
- Other Authors
- Alberts, David
- Lluria-Prevatt, Maria
- Kha, Stephanie
- Weihs, Karen
- Responsibility
- David Alberts, Maria Lluria-Prevatt, Stephanie Kha, Karen Weihs, editors
- Place of Publication
- Cham
- Publisher
- Springer
- Date of Publication
- c2016
- Physical Description
- 1 online resource (x, 346 p. : 27 illus., 19 illus. in color)
- ISBN
- 9783319248141
- 9783319248127 (print ed.)
- Subjects (MeSH)
- Continuity of Patient Care
- Neoplasms - therapy
- Patient Advocacy
- Social Support
- Survivors - psychology
- Abstract
- This textbook provides a highly coordinated, interdisciplinary model for future clinical cancer supportive care programs in National Cancer Institute (NCI)-designated Clinical and Comprehensive Cancer Centers and NCI Community Oncology Research Programs (NCORPs). At the same time, it is intended to serve as an up-to-date resource for oncologists and primary care providers that addresses the many aspects of supportive care associated with cancer survivorship. Accordingly, the book covers a wide range of areas and topics, including but not limited to psychosocial oncology, patient and family education, lifestyle change counseling, palliative care, symptom management (eg. pain control), cancer risk and genetic counseling, financial planning, and patient navigation.
- Contents
- 1. Introduction -- 2. Patient Navigation and Supportive Cancer Care -- 3. Psychosocial Oncology -- 4. Psychosocial Services/Management of Depression -- 5. Palliative Care -- 6. Survivorship Care Planning -- 7. Fundamentals of Cancer Pain Management -- 8. Breakthrough Cancer Pain -- 9. Delayed Nausea/Emesis -- 10. Fatigue -- 11. Changes in Cognitive Function Related to Chemotherapy -- 12. Sleep Disorders -- 13. Nutrition and the Cancer Survivor -- 14. Symptom Management: Weight Gain -- 15. Genetic Counseling and Risk Assessment -- 16. Cancer Survivorship in the Digital Age -- 17. Health Economic and Outcomes Research in Cancer -- 18. Hospitality Houses for Cancer Patients: The Editha House Perspective -- 19. Supportive Care: The Patient’s Perspective.
- Format
- e-Book
- Location
- Online
