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Care of Adults with Chronic Childhood Conditions : A Practical Guide

https://libcat.nshealth.ca/en/permalink/provcat40327
Mariecel Pilapil, David E. DeLaet, Alice A. Kuo, Cynthia Peacock, Niraj Sharma, editors. --Cham: Springer , c2016.
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Location
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This book addresses the unique healthcare needs of adults with chronic childhood illnesses. It presents a model of primary and secondary prevention for emerging adulthood: primary prevention in which all young adults are screened for high-risk behaviors and health needs and secondary prevention in which young adults with chronic childhood conditions are optimized through coordinated care, connections to community resources and social/family support. This book is organized in five parts. Part I …
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Other Authors
Pilapil, Mariecel
DeLaet, David E
Kuo, Alice A
Peacock, Cynthia
Sharma, Niraj
Responsibility
Mariecel Pilapil, David E. DeLaet, Alice A. Kuo, Cynthia Peacock, Niraj Sharma, editors
Place of Publication
Cham
Publisher
Springer
Date of Publication
c2016
Physical Description
1 online resource (xxvi, 436 p. : 10 illus., 9 illus. in color)
ISBN
9783319438276
9783319438252 (print ed.)
Subjects (MeSH)
Chronic Disease - therapy
Transition to Adult Care
Abstract
This book addresses the unique healthcare needs of adults with chronic childhood illnesses. It presents a model of primary and secondary prevention for emerging adulthood: primary prevention in which all young adults are screened for high-risk behaviors and health needs and secondary prevention in which young adults with chronic childhood conditions are optimized through coordinated care, connections to community resources and social/family support. This book is organized in five parts. Part I provides a detailed overview of the health care transition from pediatrics to adult medicine from both a policy and practice perspective. In Part II, the concept of emerging adulthood as a developmental period is explored and strategies for providing improved comprehensive care for this age group are discussed. Part III reviews specific chronic childhood conditions, such as attention-deficit/hyperactivity disorder, autism, cystic fibrosis, and diabetes mellitus, and offers clinical cases and summary reports that can be used as a quick guides to each condition. In Part IV, additional clinical considerations that are not necessarily condition-specific but are highly relevant to the care of young adults with chronic childhood conditions are examined. Part V describes the socio-legal issues involved in caring for this population. Care of Adults with Chronic Childhood Conditions provides primary care providers with a new framework for the care of young adults and identifies opportunities to influence patient health outcomes over a life trajectory.
Contents
Part I. Facilitating the Transition from Pediatric-Oriented to Adult-Oriented Primary Care -- Facilitating the Transition from Pediatric-Oriented to Adult-Oriented Primary Care -- Part II. Care of the Emerging Adult -- Care of the Emerging Adult -- Part III. Case-Based Examples of Management of the Young Adult with a Chronic Childhood Condition -- Attention-Deficit/Hyperactivity Disorder (ADHD) -- Autism -- Cerebral Palsy -- Childhood and Adolescent Cancer Survivors -- Congenital Heart Disease -- Cystic Fibrosis -- Diabetes Mellitus (Type 1) -- Down Syndrome -- Human Immunodeficiency Virus (HIV) -- Inflammatory Bowel Disease -- Intellectual Disability -- Juvenile Idiopathic Arthritis -- Muscular Dystrophy -- Sickle Cell Disease -- Solid Organ Transplantation -- Spina Bifida -- Part IV. Other Clinical Considerations in the Care of Adults with Chronic Childhood Conditions -- Respiratory Care of Adults with Chronic Pulmonary Disease -- Nutritional Support -- Technology Dependence of the Nervous System -- Mobility Impairment -- Sexual and Reproductive Health -- Palliative Care -- Part V. Socio-Legal Aspects of Transition Care -- Assessing and Enhancing Psychosocial Functioning -- Adherence and Self-Management -- Education -- Employment -- Independent Living -- Decision-Making and Guardianship -- Access to Health Insurance.
Format
e-Book
Location
Online
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Transition and Lifelong Care in Congenital Urology

https://libcat.nshealth.ca/en/permalink/provcat39180
Hadley M. Wood, Dan Wood, editors. --Cham: Springer International Publishing : Imprint: Humana Press , c2015.
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This volume will cover many of the most prevalent challenges for the urologist caring for adult congenital patients. The first section of the text will provide a framework for transition to an adult care model as well as a general approach to patients with three of the most common conditions encountered in congenitalism: myelodysplasia, Hypospadias, and exstrophy. The remainder of the text will cover anatomic issues in sexuality, fertitlity and genital issues, lower tract management, as well as…
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Other Authors
Wood, Hadley M
Wood, Dan
Responsibility
Hadley M. Wood, Dan Wood, editors
Place of Publication
Cham
Publisher
Springer International Publishing : Imprint: Humana Press
Date of Publication
c2015
Physical Description
1 online resource (x, 222 p. : 33 illus., 30 illus. in color)
Series Title
Current clinical urology
ISBN
9783319140421
9783319140414 (print ed.)
ISSN
2197-7194
Subjects (MeSH)
Adult
Long-Term Care
Reconstructive Surgical Procedures
Reoperation
Transition to Adult Care
Urogenital Abnormalities - surgery
Abstract
This volume will cover many of the most prevalent challenges for the urologist caring for adult congenital patients. The first section of the text will provide a framework for transition to an adult care model as well as a general approach to patients with three of the most common conditions encountered in congenitalism: myelodysplasia, Hypospadias, and exstrophy. The remainder of the text will cover anatomic issues in sexuality, fertitlity and genital issues, lower tract management, as well as upper tract management. Lastly, urological care of the pediatric cancer survivor will also be reviewed. Transition and Lifelong Care in Congenital Urology is a valuable guide for Urologists providing long term care and treatment to patients with congenital anomalies and urological age-related problems.
Contents
[publisher supplied] The basics -- The transition process: Initial assessment and defining goals and development of the multidisciplinary team -- Approach to the myelodysplasia patient -- Approach to the exstrophy patient -- Approach to the posterior urethral valve patient -- Approach to the hypospadias cripple -- Genital/urethra -- Sexual function/fertility in myelodysplasia -- Male (ejac/erectile) -- Female (incl POP) -- Revision genitoplasty, sexual function, fertility and pelvic organ prolapse in exstrophy + management of pregnancy -- Natural history of adults with hypospadias + urethral reconstruction, fertility, and chordee in hypospadias -- Issues in the long-term management of adolescents and adults with disorders of sexual differentiation (management of gonads, genital reconstruction, late presentation of the undiagnosed DSD) -- Lower tract problems in adulthood for patients with bladder reconstructions -- New or escalating recurrent UTIs -- Progressive renal deterioration: distinguishing urological from nephrological causes including nephrology input on renal protection -- New or worsening incontinence -- Trouble-shooting urostomies (leakage/stenosis): indications for and approaches to revision surgery -- Cancer risk and surveillance in the patient with an augmentation cystoplasty or urostomy -- Upper tract considerations -- Renal transplant in patients with abnormal lower tracts -- Management of calculi in patients with malabsorption or osteodystrophy -- Late presentation of patient with primary bladder neck obstruction and/or PUV -- Age-related urological problems in the complex urological patient -- BPH and neurogenic bladder -- Prostate cancer screening/treatment -- Hypogonadism -- Urological follow-up of childhood malignancies eg. Wilms Tumor and Rhabdomyoscarcomas.
Format
e-Book
Location
Online
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Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions : An International Perspective on Nurses' Roles and Interventions

https://libcat.nshealth.ca/en/permalink/provcat45096
Cecily L. Betz, Imelda T. Coyne, editors. --Cham: Springer , c2020.
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This book offers essential information on interventions and actions that enable and promote transition experiences for adolescents and young adults. It provides guidance on appropriate strategies that bring together these groups and caregivers in the context of transition preparation, and those which optimize adolescents’ and young adults’ ability to self-manage their healthcare. The health care transition for adolescents and young adults has gained more attention given the improved survival ra…
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Other Authors
Betz, Cecily L.
Coyne, Imelda T.
Responsibility
Cecily L. Betz, Imelda T. Coyne, editors
Place of Publication
Cham
Publisher
Springer
Date of Publication
c2020
Physical Description
1 online resource (xii, 336 p.) : 19 illus., 13 illus. in color
ISBN
9783030233846
9783030233839 (Print ed.)
9783030233853 (Print ed.)
9783030233860 (Print ed.)
Subjects (MeSH)
Adolescent
Nurse's Role
Transition to Adult Care
Transitional Care
Young Adult
Specialty
Adolescent Health
Nursing
Abstract
This book offers essential information on interventions and actions that enable and promote transition experiences for adolescents and young adults. It provides guidance on appropriate strategies that bring together these groups and caregivers in the context of transition preparation, and those which optimize adolescents’ and young adults’ ability to self-manage their healthcare. The health care transition for adolescents and young adults has gained more attention given the improved survival rates, including for those with long-term conditions. It is now estimated that more than 90% of children diagnosed with a long-term condition will survive into adulthood. The significant change in survival requires concomitant services to facilitate adolescents’ and young adults’ successful transition to adult health care, therefore providers need education, knowledge and skills to support healthcare transition services. A recent US national survey demonstrated only 10% of parents/caregivers reported that their children received transition preparation services. This book is targeted at nurses and pediatric and adult health care providers of different disciplines seeking guidance on which interventions are available, how they can be used, advantages and challenges, and how best to promote a seamless transition for all adolescents and young adults with long-term conditions. It provides several examples of transition programmes and initiatives worldwide. There is an increasing focus on how nurses can support transition but little guidance on what is effective and what has been tried. This book will fill a gap by addressing all of these issues outlined above and by providing worked examples from leading nurse researchers and academics worldwide.
Contents
1. Healthcare Transition: An Overview and Introduction -- 2. Empowering Young Persons During the Transition to Adulthood -- 3. Determinants of Quality of Healthcare for Adolescents and Young Adults -- 4. Analysis of Self-Management and Transition Readiness Instruments for Clinical Practice -- 5. Measurable Outcomes for Transition: The Nurses’ Role -- 6. Best Practice for Healthcare Transition: Development and Use of the Benchmarks for Transition -- 7. Transition of Care for Adolescents from Child to Adult Health Services: A Systematic Review -- 8. Transition in Cystic Fibrosis: An International Experience -- 9. On Your Own Feet: A Practical Framework for Improving Transitional Care and Young People’s Self-Management -- 10. Bridging Pediatric and Adult Healthcare Settings in a Nurse-Led Cystic Fibrosis Transition Initiative -- 11. Nurse-Led Effort in Developing, Implementing and Evaluating Healthcare Transition and Promoting Developmentally Appropriate Healthcare for Young People with Haemophilia -- 12. Transitional Care in Endocrinology -- 13. Nursing Initiatives and Future Directions for Transition Practice and Research.
Format
e-Book
Location
Online
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Transition from pediatric to adult medical care

https://libcat.nshealth.ca/en/permalink/provcat54572
Wood, David. --New York, NY: Nova Biomedical , 2012.
Call Number
WS 210 T76 2012
Location
IWK Health Sciences Library
Call Number
WS 210 T76 2012
Author
Wood, David
Other Authors
Reiss, John G.
Ferris, Maria E.
Edwards, Linda R.
Merrick, Joav
Place of Publication
New York, NY
Publisher
Nova Biomedical
Date of Publication
2012
Physical Description
338 p.
Series Title
Pediatrics, child and adolescent health
ISBN
9.78E+12
Subjects (MeSH)
Transition to Adult Care
Chronic Disease
Child
Adolescent
Format
Book
Location
IWK Health Sciences Library
Copies
1
Loan Period
2 weeks
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Transitioning from Pediatric to Adult Care in Endocrinology : A Clinical Handbook

https://libcat.nshealth.ca/en/permalink/provcat44191
Sarah K. Lyons, Marisa E. Hilliard, editors. --Cham: Springer , 2019.
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This unique handbook provides pediatric and adult endocrinologists and multidisciplinary clinical care providers a guide to transition from pediatric to adult care and an understanding of developmental and psychosocial issues of young adulthood and how they relate to healthcare and disease self-management. The handbook is divided into two parts. Part one describes transition interventions and novel strategies that can be integrated into routine care and gives practical considerations for transi…
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Other Authors
Lyons, Sarah K.
Hilliard, Marisa E.
Responsibility
Sarah K. Lyons, Marisa E. Hilliard, editors
Place of Publication
Cham
Publisher
Springer
Date of Publication
2019
Physical Description
1 online resource (xxi, 227 p.) : 5 illus. in color
ISBN
9783030050450
9783030050443 (Print ed.)
9783030050467 (Print ed.)
Subjects (MeSH)
Child
Endocrine Diseases - therapy
Endocrinology - methods
Patient Care Planning
Transition to Adult Care
Specialty
Adolescent Health
Endocrinology
Health Services Administration
Abstract
This unique handbook provides pediatric and adult endocrinologists and multidisciplinary clinical care providers a guide to transition from pediatric to adult care and an understanding of developmental and psychosocial issues of young adulthood and how they relate to healthcare and disease self-management. The handbook is divided into two parts. Part one describes transition interventions and novel strategies that can be integrated into routine care and gives practical considerations for transition processes from both the pediatric and adult perspectives, with applications across multiple endocrine conditions. Part two focuses on transition issues specific to common endocrine conditions – type 1 and type 2 diabetes, Turner syndrome, congenital adrenal hyperplasia, endocrine sequelae of childhood cancer, and transgender care – with condition-specific developmental and psychosocial issues, treatment and screening recommendations, healthcare process considerations, transition care guidelines, and key resources for more information. By highlighting medical, psychosocial, and healthcare delivery concerns relevant to transition to adult care, this book provides a practical, patient-centered overview of the essential information to supporting optimal adult care transition across a number of endocrine conditions. Timely and practical, Transitioning from Pediatric to Adult Care in Endocrinology: A Clinical Handbook is an excellent resource for pediatric and adult endocrinologists, behavioral healthcare providers, allied health professionals, primary care providers, and all clinical staff working with young people with endocrine conditions as they transition from children to adults.
Contents
Part I. Transition Issues across Endocrine Conditions -- Developmental Issues Associated with Emerging Adulthood: Competing Demands That Complicate Disease Management -- Medical and Healthcare Issues During Transition for Patients with Endocrine Disorders -- Transition Interventions and Clinical Strategies -- Pediatrics: Practical Considerations for the Transition Process -- Adult Care: Practical Considerations for Patients with Endocrine Disease Transitioning from Pediatric to Adult Care -- Part II. Transition Considerations for Specific Endocrine Conditions -- Transition Considerations in Youth-Onset Diabetes (Type 1 and Type 2) -- Transition in Turner Syndrome: An Interdisciplinary Approach -- Congenital Adrenal Hyperplasia: Transition from Pediatric to Adult Care -- Transition Considerations for Cancer Survivors with Endocrine Sequela -- Transition Considerations for Transgender Patients.
Format
e-Book
Location
Online
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Transitioning Medical Care : Through Adolescence to Adulthood

https://libcat.nshealth.ca/en/permalink/provcat44252
Dan Wood, Alun Williams, Martin A. Koyle, Andrew D. Baird, editors. --Cham: Springer , 2019.
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Location
Online
This book provides a guide to the complexities of medical care through adolescence and into adulthood. The principles of transition, the management of patients and parents, and developmentally appropriate adolescent health care are discussed and evaluated. The academic importance of understanding long-term outcomes of treatments and diseases that began in childhood is also covered. This book aims to help readers build a multidisciplinary transition team and details the barriers encountered in t…
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Other Authors
Wood, Dan
Williams, Alun
Koyle, Martin A.
Baird, Andrew D.
Responsibility
Dan Wood, Alun Williams, Martin A. Koyle, Andrew D. Baird, editors
Place of Publication
Cham
Publisher
Springer
Date of Publication
2019
Physical Description
1 online resource (viii, 152 p.) : 3 illus., 1 illus. in color
ISBN
9783030058951
9783030058937 (Print ed.)
9783030058944 (Print ed.)
Subjects (MeSH)
Adolescent
Patient Care Planning
Transition to Adult Care
Specialty
Adolescent Health
Health Services Administration
Abstract
This book provides a guide to the complexities of medical care through adolescence and into adulthood. The principles of transition, the management of patients and parents, and developmentally appropriate adolescent health care are discussed and evaluated. The academic importance of understanding long-term outcomes of treatments and diseases that began in childhood is also covered. This book aims to help readers build a multidisciplinary transition team and details the barriers encountered in this process and the ways to overcome them.
Contents
1. Introduction: What Do Patients Worry About? -- 2. History of Adolescent Care in -- 3. Adolescence: An Overview -- 4. Metrics and Guidelines -- 5. Information Transfer - 6. Managing the Parents -- 7. The Importance of the Specialist Nurse Role as Part of the Lifelong Care of Congenital Conditions -- 8. Barriers to Transition -- 9. Developmentally Appropriate Adolescent Health Care: An Essential Prerequisite for Positive Transition Experiences -- 10. Quality and Safety in Transitional Urologic Care -- 11. Building the Multidisciplinary Transition Team -- 12. Political Concerns in Transitioning Medical Care -- 13. Taking a Service Forward: The Adolescent and Adult Care of Major Congenital Anomalies—The Move from Adolescent to Lifelong Care.
Format
e-Book
Location
Online
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Transition of Care Committee

https://libcat.nshealth.ca/en/permalink/chpams37218
IWK. Transition Team, IWK. Rehabilitation Care Team, IWK. Communications and Public Affairs. Halifax, NS: IWK Health Centre , 2020.
Pamphlet Number
PL-1121
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The Transition of Care Committee brings together youth, parents/caregivers, health care providers and community partners to improve the transition from pediatric to adult medical care. Areas of work may include shaping policy and practice, creating resources, program development, research and evaluation, strategic planning and work plan development. Please also refer to PL-0859 booklet "Getting ready for adult care - Parent / Caregiver Version" for more information about the program.
Available Online
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Corporate Author
IWK. Transition Team
IWK. Rehabilitation Care Team
IWK. Communications and Public Affairs
Alternate Title
Committee Member Role Description
Place of Publication
Halifax, NS
Publisher
IWK Health Centre
Date of Publication
2020
Format
Pamphlet
Language
English
Physical Description
1 electronic document : digital, PDF file
Subjects (MeSH)
Adolescent Health Services
Child Advocacy
Patient Care Team
Transition to Adult Care
Subjects (LCSH)
Adolescent medicine
Health care teams
Health planning
Medical care--Needs assessment
Abstract
The Transition of Care Committee brings together youth, parents/caregivers, health care providers and community partners to improve the transition from pediatric to adult medical care. Areas of work may include shaping policy and practice, creating resources, program development, research and evaluation, strategic planning and work plan development. Please also refer to PL-0859 booklet "Getting ready for adult care - Parent / Caregiver Version" for more information about the program.
Notes
Parents may also refer to PL-0859 booklet "Getting ready for adult care - Parent / Caregiver Version" for parents.
Responsibility
IWK Transition Team, Halifax, NS
Pamphlet Number
PL-1121
Zone
All Zones
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7 records – page 1 of 1.